THE-BOOK-OF-ROO

WELL I KNOW ITS BEEN A FEW DAYS SINCE I HAVE GIVEN MY LITTLE TIPS, BUT AS YOU ALL KNOW ITS BEEN A HECTIC AND INSANE WEEK FOR ME LOL, SO I JUST DIDN’T HAVE THE TIME OR ENERGY TO DO IT LOL. I ALSO FELT GOD WAS LEADING ME TO WRITE OTHER THINGS, AND I DIDN’T WANT TO GIVE YOU ALL TO MUCH TO READ IN ONE DAY LOL. YESTERDAY I GOT A LETTER FROM A PRISCILLA SHE HAS A DAUGHTER WITH O.I, I SEEN PIX OF HER LITTLE GIRL YESTERDAY SHE IS SO SO BEAUTIFUL SHE NO MORE THAN A FEW MONTHS OLD I THINK. PRISCILLA HAD ASKED ME TO TALK ABOUT, AND GIVE ADVICE TO NEW MOMS WHO HAVE A BABY WITH O.I, AND ARE STILL LEARNING HOW TO HANDLE CERTAIN DOCTORS APPOINTMENTS, FOR INSTANCE WHEN YOUR BABY HAS TO GO FOR BLOOD WORK OR FOR ITS VACCINATION SHOTS WHAT DO YOU DO??? LIKE IN HER CASE SHE HAD HER DAUGHTER GET THE SHOTS, AND THAN WHEN SHE CAME HOME SHE REALIZED THAT HER BABY MUST OF BROKEN HER LEG FROM GETTING THESE SHOTS. SO WHAT DO YOU DO? DO YOU RISK IT AND GO THROUGH WITH THE SHOTS OR DO YOU SAY NO, AND NOT GET THE SHOTS? I KNOW SOME PEOPLE MAYBE SAYING THIS IS A WASTE OF TIME TO TALK ABOUT, BUT TO SOME NEW MOTHERS IT ISN’T. IN MY CASE I GOT THE SHOTS, WAS IT A RISK YES, BUT SOME TIMES YOU HAVE TO THINK ABOUT WHATS WORSE, TAKING THE RISK OF BREAKING ONE OR TWO BONES, OR GETTING SOME DEADLY VIRUS THAT MAYBE THE SHOT COULD OF PREVENTED. THAT GOES FOR ANYTHING IN LIFE WHEN YOU HAVE O.I THOUGH. ME AND MY PARENTS HAD TO FINALLY LEARN, OK WE CAN PUT ME IN A BUBBLE, AND WORRY ABOUT EVERY SINGLE THING THAT COULD BREAK MY BONES, OR THEY COULD LET ME LEARN WHAT I CAN DO, AND NOT DO, AND ACTUALLY LIVE OUT MY LIFE. ARE WE CAREFUL? YES OF COURSE, DO WE WORRY AT TIMES? YES OF COURSE WE DO, BUT IF YOU SIT THERE AND WORRY ABOUT EVERY SINGLE THING THAT COULD BREAK A PERSON WITH O.I BONES THAN YOU WILL EVENTUALLY DRIVE YOUR SELF CRAZY!!! MY MOM WAS MOSTLY MY CAREGIVER SO AFTER AWHILE SHE GOT USED TO MY BONES AND MY BODY, AND HAD LEARNED JUST HOW MUCH PRESSURE SHE COULD PUT ON ME WITHOUT BREAKING ME. SO MY SUGGESTION TO YOU ALL IS, STILL DON’T LET A NURSE OR DOCTOR TOUCH YOUR KID UNLESS YOU FEEL COMFORTABLE WITH THEM DOING SO, AND YOUR SURE THAT THEY KNOW ALL THEY NEED TO KNOW ABOUT O.I, CAUSE YES THERE ARE EVEN DOCTORS OUT THERE THAT DON’T KNOW ALLOT ABOUT O.I. ALSO IF YOUR BABY HAS TO GET A SHOT SEE IF THE NURSE WILL LET YOU DO LIKE MY NURSES LET MY MOM DO. MY MOM MOVED MY LEGS FOR THEM AND HELD THEM DOWN WHEN THEY NEEDED HER TO, THEY DID NOT ACTUALLY TOUCH ME ALL THEY DID WAS BASICALLY PUT THE NEEDLES IN. ALSO IF YOUR CHILD EVER NEEDS BLOOD WORK, MAKE SURE THAT THEY DO NOT PUT THE RUBBER BAND TO TIGHT, THEY CAN NOT PUT IT TIGHT AROUND A O.I CHILD’S ARMS OR LEGS LIKE THEY COULD THE AVERAGE CHILD, SO ALWAYS MAKE SURE IT ISN’T TO TIGHT TO WHERE YOUR CHILD WILL GET HURT. NOW PLEASE ALSO REMEMBER THOUGH THAT THESE RULES DO NOT APPLY FOR ALL O.I CHILDREN THESE RULES ARE FOR SEVERE CASES OF O.I OR AT LEAST PARTIALLY SEVERE. WELL THAT’S MY TIP FOR TODAY. HOPE YOU ENJOYED IT, GOD BLESS ALL WHO READ THIS, WITH LOVE JACKIE 🙂

P.S PLEASE GO WATCH THE VIDEO SOMEONE MADE OF ME, AND MY LIFE ITS ON FACEBOOK FOR NOW, BUT AM TRYING TO LOAD IT ON TO BLOG SITE SOON, FOR NOW THOUGH GO ON FACEBOOK AND SEE IT, YOU CAN GO TO MY FACEBOOK PAGE TYPE IN JACKIE YAFANARO AND I SHOULD POP UP HEHEHE. OK THANKS AGAIN, GOD BLESS

This entry was posted on November 22, 2010 at 4:20 PM and is filed under TIPS & SUGGESTIONS, TIPS & SUGGESTIONS ABOUT HOW TO LIVE WITH O.I THIS PAGE IS ESPECIALLY DEDICATED TO NEW MOMS WHO GIVE BIRTH TO O.I BABIES. You can subscribe via RSS 2.0 feed to this post's comments. You can comment below, or link to this permanent URL from your own site.