MY LIFE AND WHO I AM
ME AT MY SIS WEDDING
HI. My names Jackie. I have a bone disease called Osteogenisis Imperfecta, and another disease called hydrocephalus. hydrocephalus is a disease where fluid builds up around a person’s brain it in it self can become very dangerous if it is not watched carefully by doctors. I have a shunt which incase some people don’t know is a type of tubing, to be exact it is called a surgical drainage tube this tube starts off at the top of my head and goes all the way down to my stomach. It’s basically just a tube with a fancy little tip at the end, that fancy part sucks up all the extra fluid around my brain and drains it in to my stomach. Okay so that’s the first disease I have, the second disease like I said earlier is called Osteogenisis Imperfecta. This disease is the one I mostly focus on, this is the one that gives me all the trouble lol. This disease is a brittle bone disease, basically my bones do not grow and break at a touch. I remember when I was younger and my doctor was trying to explain things to me he told me my bones are as thin as a tooth pick and soft as Jello!!! so yeah obviously that’s bad lol. I break many many bones a day I pretty much break a bone every hour. I know insane right can’t possibly be true right? well sad to tell you it is all true!!! I break a bone when I cough when I sneeze some times I even break bones from having a fast heart beat and I break from taking deep breaths!! people ask me all the time if when I break can I feel it is it painful? well um yeah duh, is it painful when anyone else breaks a bone? yes it is, so why would it be any different for me lol, all I can do is try to explain it like this, People with O.I myself included experience the same symptoms when we break as anyone else in the world does when their bones break, the thing that’s different about it is the strength it takes to break them, its kind of like being in a car accident every day or being beat up everyday, I know that’s a little crazy to think but its the best way to describe how it feels to a healthy average person. I am 24 years old but I do not look it at all I pretty much look like im 24 months old lol. a part of the disease is your bones do not grow so because your bones do not grow your body obviously doesn’t either, so I am only 25 inches long and about 33 pounds. My body may not grow but my organs still have grown to a normal 24 year old adult organs, so because of that I got another whole set of medical issues, because all my organs are being crushed, best way to explain it is its like trying to fit 10 pounds of flour in a 5 pound bag if you really smoosh it all down it will fit but eventually all the sides are gonna start bulging out lol. that’s kinda like me, everything was smooshed inside of me so because of that everything’s on top of each other and well being smooshed lol, like right now because everything’s being crushed and because my bones are so brittle and deformed my spine is now pressing on my lungs and my lungs could not take it anymore and so all of my right lung is collapsed and most of my left lung 😦 so I am now dependent on oxygen, I was put on oxygen about 9 or 10 years ago, I think I was around 15 or 16 years old the first time my lungs collapsed. When I was born my doctors told my parents I would die with in 10 days but by the grace of GOD I am still here!!! yahoo yahoo lol. This disease is pretty rare, there are different types of this disease when I was born there was a total of 6 types now there’s I think 8 there may even be more than that not fully sure. I have one of the most severe types, actually when I was born my Doctors said I had the worse case they ever seen, and still when I see different Doctors they are still amazed by me because a lot of them still say they never seen a case of O.I like mine, and anyone they have seen that look similar have all passed on with in a few years after birth. At this moment in time me my doctors and my family don’t know of anyone with O.I as severe as mine that have lived as long as me, now please anyone who reads this don’t get me wrong especially if people with O.I read this, I am not saying I have the worse case I am just saying I don’t know anyone and either do my Doctors with a person that has my case of O.I which is one of the reasons I made this blog. I want to be able to share my story and my life with others so people can learn about people with Osteogenisis and help other people who may have the disease. My goal one day is to become a writer so that is also why I made this blog am hoping to practice some of my writing and then be able to write my own book one day. I am not going to lie this disease is a rough disease to have it is very painful and for sure a struggle, but I want to show people, that if you have Osteogenisis Imperfecta or as we all call it O.I even though it’s a struggle and a life threatening disease it doesn’t mean it’s a death sentence, it doesn’t mean you can’t live a somewhat normal life, it doesn’t mean you can’t live a happy and fulfilling life. There is such a negative outlook on this disease so many people and Doctors think if you have O.I than you got to be unhappy and depressed, and yes I can understand if there are people out there with O.I that are like that, cause like I said it isn’t easy and im not going to pretend it is, but I also am here to tell you all and show you that we can survive we can be happy we can have a fulfilling life, I know I DO!!! I have such an amazing family and parents that take amazing care of me and have taught me that with GOD I can do all things, why can I? cause the bible says I can. So anyways I just wanted to give you a short detailing of my life and why I made this blog ill be sharing allot more soon but for now just wanted to get something up finally lol. If anyone has any comments or questions about me or about O.I than please feel free to ask. and anyone that does read this blog GOD bless you all. P.S please excuse my spelling and grammar errors, and I apologize if its kind of hard to read some of this. I never was fully able to finish school so I am not the best when it comes to spelling and grammar lol.
THE-BOOK-OF-ROO 
November 12, 2010 at 2:06 PM
I’m so excited to see you up and about!
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November 12, 2010 at 10:33 PM
I too have OI, my mom had it and my child also has it so i know the pain you must live with. may god bless you and your family
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November 17, 2010 at 8:14 AM
Jeannie if you ever want to talk you can contact me at j.yafanaro@sbcglobal.net
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November 12, 2010 at 2:09 PM
hey!
i’m really impressed by your spirit, in fact i’m totally amazed!!!!!!! It really takes a lot of will power not to let your disabilities take over you. Hold on to your spirit.
Wish you the best!
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November 12, 2010 at 2:17 PM
Hi Jackie,i ve read it all and you re amazing with all the courage and faith in our beloved GOD.Your grammar was fine so dont worry about it.Just keep your faith in GOD and HE will lead you in your daily needs.Being a nurse i know how painful it is when you break a bone.Always keep a smile on your face though sometimes its harddue pain but remember that GOD wont give us more than we can endure.BYE .god BLESS YOU.
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March 15, 2012 at 6:32 PM
Hi Jackie,
I am SO GLAD YOU HAVE RECONNECTED WITH ALL OF US OUT HERE! We are in exciting times and HE LOVES US INFINITELY. Do you know WE ARE IN THE SCRIPTURES! YES!
Deuteronomy 28:58-61
“…………….THY PLAGUES WONDERFUL, AND THE PLAGUES OF THEY SEED (CHILDREN DOWN THE STREAM OF TIME)
EVEN GREAT PLAGUES, AND OF LONG CONTINUANCE, AND SORE SICKNESSES, AND OF LONG CONTINUANCE…..ETC.,
Down the stream of time we have been under fire, through the genetic code, but through OUR SAVIOR we can endure the 43,200 seconds which equals twelve hours and HE IS GLORIFIED AND WE HAVE A FUTURE CALLED HEAVEN!
Psalm 51:8
“Make me to hear JOY AND GLADNESS that the bones which thou hast broken my rejoice!” I rejoice because I KNOW WE ARE HIS DAUGHTERS.
The elements of the philosophy of ETERNAL LIFE housed in the Scriptures is the only thing that makes sense in this laser house of pain called Spaceship Earth under siege by the prince of the power of the air.
We are in a war between GOOD AND evil and because of the Scriptures we have more than hope…..we have a future reality that is grand and glorious ! All that human experience, you and me can endure we deal with, but what is this compared to an eternal future!
I’m excited right now………………..you are in my THOUGHTS, PRAYERS AND LOVE,
Revelation 12:11 says:
“And they overcame him (satan) by the BLOOD OF THE LAMB, and the WORD OF OUR TESTIMONY; AND THEY LOVED NOT THEIR LOVES UNTO DEATH!”
I PRAISE HIM AND THANK YOU FOR YOUR LIFE’S TESTIMONY!
Semper Fidelis,
Christinah
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March 15, 2012 at 6:42 PM
WOW ITS SO FUNNY YOU WROTE THIS BECAUSE ITS EXACTLY WHAT GODS BEEN SHOWING ME AND IS WHAT IM RESEARCHING AND WRITING MY NEXT BLOG ON LOL PRAISE THE LORD!! THANKS FOR THE ENCOURAGEMENT AND THANK YOU FOR CONFIRMING TO ME WHAT I ALREADY FELT THE LORDS BEEN LAYING ON MY HEART 🙂 GOD BLESS LOVE TO ALL ❤
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November 12, 2010 at 4:00 PM
THANK YOU SO MUCH THE SITES ONLY BEEN UP FOR 5 OR 6 HOURS AND ALREADY WE GOT PEOPLE COMMENTING YAHOOO, PLEASE REMEMBER TO KEEP IN MIND THOUGH THAT WHAT I WROTE UP THIS MORNING IS NOT GOING TO BE THE ONLY THING EVER ON IT, IM GOING TO BE WRITING MORE ABOUT MY LIFE ABOUT O.I AND POSTING PICTURES OF MY ARTWORK AND MUCH MORE FUN STUFF SO KEEP CHECKING BACK FROM TIME TO TIME THIS IS JUST THE BEGINNING 🙂
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November 12, 2010 at 4:26 PM
Hey Jackie.
just wanted to let you know that this is awesome. You passion and love towards others always shows. May the Lord continue to guide you and take you to the places HE wants you to go. May this blog touch lives that could never be touched before. May His strength continue to be your strength and don’t stop. You will write a book and when you do, I can say, “I knew her when” etc…… We love you, Nancy and Darrell
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November 12, 2010 at 9:05 PM
HEY JACKIE I JUST READ YOUR BLOG. YOU DID A VERY GOOD JOB. I THINK YOU WILL BE ABLE TO GO ON TO WRITE YOUR BOOK CAUSE NOTHING HAS STOPPED YOU . YOU DO HAVE AN AMAZING FAMILY WHO’S LOVE FOR EACH OTHER AND GOD HAS ALWAYS SHOWN. YOU ARE ALWAYS SMILING WHEN YOU ARE WITH YOUR FAMILY AND YOU CAN SEE HOW MUCH YOU ALL LOVE EACH OTHER. KEEP UP THE HARD WORK, YOU INSPIRE ME, LOVE YOU ALWAYS MARY ROSE
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November 12, 2010 at 11:34 PM
hi there, i loved what you wrote, and this website will be spiritual for all who come here. it has been a long time since we spoke, we almost forgot each other lol. i am very sick too. i have copd, asthma, fibromyaliga so i can relate to the pain,being sick all the time, and in pain. we can only do the best we can, and let god do the rest. love ya, sandee
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November 13, 2010 at 1:38 AM
Hi Jackie,just read your blog and thought is was amazing,you surely inspire everyone also know your book will inspire others.Also admire your strength and faith.May God keep Blessing you and your amazing family.
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November 13, 2010 at 11:25 AM
Hey Roo! Great job on the blog! What an awesome idea! You have always been the one encouraging others and this is exactly the way to reach more people who need to be encouraged! Whenever I think I have something bad going on, or someone else we know mutually is having a hard time with something in life, I tell them to remember you and how you NEVER complain! To look to our God who strengthens us (you) and builds us up (you)! You are an inspiration Jacqueline and I look forward to reading your book and getting a signed edition!!!!! Miss you and the fam : > ( tell mom to quit losing my phone number so she can call me back when I leave her messages! lol
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November 13, 2010 at 1:49 PM
Jackie…You are truly a beautiful,inspirational and amazing person!! Keep up the good works :-). Can’t wait for the book to be in the bookstores!! God bless you and your family.
Love,
Debbie & Ian
(FVC)
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November 13, 2010 at 5:01 PM
Jackie,
You are a modern day ANGEL!! You are an inspiration for all of us that have any kind of disease. Your family is amazing! You can do anything! I hope you become a writer and hope all of your dreams come true!! God Bless You!!!!
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November 13, 2010 at 7:20 PM
You may be weak in body but in your being you are one tuff little lady.Show that strenght in your words and never say I give.I one time new a little girl just like you and I dont think I ever seen her frown.Hope to read more of your writings.
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December 4, 2010 at 5:32 AM
THANK YOU SO MUCH, GLAD YOUR ENJOYING MY BLOGS 🙂 TAKE CARE GOD BLESS
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November 13, 2010 at 7:24 PM
[…] own blog about here life osteogenesis imperfecta, her faith and her artwork. Her blog is entitled The Book of Roo. Jackie is an inspiring young woman and her blog promises to be a must read. Jackie recently […]
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November 13, 2010 at 8:58 PM
Dear Jackie,
God sure gave us an angel.You are so amazing!!!I wish that everbody had such a positive attitude like you!Good luck with your book.p.s. whats it going to be about??
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December 4, 2010 at 5:30 AM
HI THANKS SO MUCH 🙂 I AM HOPING FOR IT TO BE ABOUT ALOT OF THE SAME STUFF IM WRITING IN THIS BLOG 🙂
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November 14, 2010 at 12:01 AM
Thanks for starting this blog. 🙂 You can certainly be an inspiration for all the young girls who have OI. My daughter is 10 and has type III. She has several friends in the same age bracket and they love looking up to you girls in your 20’s and even 30’s. 🙂 Take care and keep writing!
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November 14, 2010 at 2:43 PM
Hello Jackie, I think you are a true inspiration to everyone, not just people with O.I. I hope to read more of your blogs in the future, you did a great job of explaining a two deseases that most people know little about. Keep smiling sweetie and Hugs to you !Jean
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November 15, 2010 at 11:56 PM
Hey “Lil Mama”, Great Blog. You did a terrific job explaining all your deseases !! You are so cute and lovable. I miss chatting with you, we had a great time, didn’t we. God has trully Blessed you and your family !!!!! And ALWAYS WILL !!!! Have you written your book yet? Looked like a site for it was isted in one of the blogs. I can’t wait to read it !!! You are such a delightful friend !!! You have gotten me through a lot of down time. TYVM my friend. Hope I helped you in your moments too. May God Bless You and your family ALWAYS hun. Love ya !!! teddybear
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December 4, 2010 at 5:28 AM
HI HUN NO BOOK YET 😦 BUT I AM GETTING THERE, THAT IS WHY I DID THIS BLOG, TO START PRACTICING FOR IT 🙂 HOW ARE YOU? MISS SEEING YOU TOO, AND YES OF COURSE YOU HELPED ME TO, YOU WERE ALWAYS VERY SWEET TO ME, I DONT GET ON POGO MUCH ANYMORE IM SORRY 😦 BUT IF YOU EVER WANT TO CONTACT ME HERES MY ADDY J.YAFANARO@SBCGLOBAL.NET WRITE ME ANY TIME OK, AM GLAD YOU LOVE THE BLOG SO MUCH 🙂 I WRITE ON IT EVERY DAY, SO KEEP CHECKING IT OUT. GOD BLESS YOU, AND YOUR FAMILY OKAY. I HOPE ILL SEE YOU AROUND SOON. LOVE YA, BYE BYE FOR NOW 🙂
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November 16, 2010 at 12:00 AM
DEAR JACKIE,
I JUST WANTED TO STOP IN AND SAY HI. I GOT THIS FROM A VERY GOOD FRIEND. I AM IN THE LATE STAGES OF OSTEROPOROSIS AND I TOO BREAK BONES JUST COUGHING AND SNEEZING BUT IT IS NOT AS BAD AS YOURS. YOU HAVE SO MUCH FAITH IN THE GOD ABOVE. THANK GOD FOR FAMILIES AS I TOO HAVE A VERY LOVING CARING FAMILY AND TODAY YOU DON’T SEE THAT OFTEN. MAY GOD STAY WITH YOU AND I HAVE NO DOUBT IN MY MIND THAT YOU WILL WRITE THAT BOOK AND I SO HOPE I GET A COPY OF IT. YOU HANG IN THERE GIRL CAUSE GOD IS ON YOUR SIDE. TAKE CARE AND YOU KNOW WHAT THEY SAY THE GOOD LORD DOESN’T GIVE US MORE THAN WE CAN HANDLE EVEN THOUGH SOMETIMES I DON’T FEEL REAL STRONG………THANK YOU FOR THE INSPIRATION… KATHRYN
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December 4, 2010 at 5:22 AM
THANK YOU SO MUCH FOR THE ENCOURAGEMENT. IM SO SORRY TO HEAR THAT YOUR GOING THROUGH ALL THAT, I KNOW HOW IT FEELS, IT CAN BE VERY HARD AT TIMES, BUT WHENEVER THINGS START GETTING TO HARD FOR ME, I JUST GO IN TO MY ROOM PUT ON CHRISTIAN/WORSHIP MUSIC, AND I HAND ALL MY CARES, ALL MY WORRIES, ALL MY PAIN, RIGHT OVER TO THE LORD HE WILL GET US BOTH THROUGH, I KNOW IT, AND THE REASON I HAVE SUCH STRONG FAITH, IS BECAUSE, I HAVE WITNESSED ALL THAT HE CAN DO, WE GOT TO KEEP BELIEVING, AND STANDING ON HIS PROMISES. GOD BLESS, WITH LOVE, JACKIE 🙂
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November 16, 2010 at 1:23 PM
HELLO
I WAS SENT HERE BY A MUTUAL FRIEND, LISA HILL. SHE SENT ME HERE BECAUSE I NEEDED TO READ YOUR STORY. I HAVE LINGERING HEALTH ISSUES, BUT NOTHING LIKE YOURS.
YOU REMIND ME OF A COUSIN WHO WAS AFFLICTED BY POLIO WHEN I WAS A BOY. SHE FOUGHT FOR LIFE LIKE YOU DO.
ALL GOD’S BEST TO YOU. DON’T GIVE UP!!
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December 4, 2010 at 5:16 AM
THANK YOU SO MUCH, IM GLAD YOU ENJOY READING MY BLOGS, IM SO SORRY TO HEAR ABOUT YOUR COUSIN, AND I WILL BE PRAYING FOR YOUR HEALTH ISSUES, I KNOW WHAT ITS LIKE, AND AT TIMES IT IS NOT EASY, BUT WITH GOD WE CAN DO ALL THINGS, AND WITH HIM ALL THINGS ARE POSSIBLE. STAY STRONG, AND DONT YOU GIVE UP EITHER 🙂 AGAIN THANKS FOR READING. GOD BLESS, WITH LOVE, JACKIE 🙂
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November 16, 2010 at 6:56 PM
Hi Jackie.
You are a very inspiring young lady..This blog should help a lot of people learn about these dieases.
I lost my daughter this past summer.She was 37, She had 10 different dieases and only had 20% of her lungs left. So I can only imagine what you are going through, Keep the spirits up. God Bless you…..
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December 7, 2010 at 8:55 AM
HI HUN, IM SO SORRY TO HEAR ABOUT YOUR DAUGHTER 😦 I WILL BE PRAYING FOR YOU, KEEP THE FAITH, AND THANK YOU FOR THE ENCOURAGEMENT, IM GLAD YOU LIKE THE BLOG. WELL HOPE TO TALK TO YOU AGAIN SOON, PLEASE KEEP READING, AND PLEASE SHARE THIS BLOG WITH ALL YOUR FRIENDS AND FAMILY. LOVE JACKIE
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November 16, 2010 at 7:59 PM
Peace, mercy and blessings of God
I Maram Qatrawi from Jordan, I have read your story with a wonderful and strong and put you clean your soul
To pay tribute to my heart
And Allah is testing us to see our patience to be patient satisfaction Trlake God and paradise
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November 16, 2010 at 8:33 PM
Hi, This blog is a great idea to give people a look into the daily life we lead with OI. The drs. think I have type 5, Many of my friends have stopped fracturing but I fracture so often I don’t count anymore. Just like you I have to be so careful and I go to extremes to avoid sneezing & coughing. I try techniques to help me control my pain. I turned 31 this year & am always looking to befriend people especially those with OI because on the tough days it helps to know someone understands. I look forward to the future. I wish you the best of luck with your art.
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November 20, 2010 at 4:48 AM
Jackie, I never realized you had O.I. Thanks for sharing your story. I think you did a great job at writing it!! I love the name of it too!! The book of Roo!! I am definately going to put you on my prayer list. You are a beautiful girl whether you look 24 mnths or 24 years. God can do amazing things in our lives. He has great plans for you. I was born crippled and they told my parents I would never walk. I was also a blue baby and was not getting enough oxygen. My parents took me to 3 different specialists and after a cast and night splints I was my parent’s earliest walker at 9 months old.At 46 years old I still have my cast!! Noone is taking that away. I have had nothing but trials in my life since then so I always believe that when God gives us these diseases and disorders and trials etc. He has a purpose for us. So keep up the faith girl!!! God is shining down on you!! Love you Roo
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December 7, 2010 at 9:01 AM
THANK YOU SO MUCH FOR THE ENCOURAGEMENT 🙂 YES MY FAMILIES NICK NAME FOR ME IS ROO, SO A FRIEND HELPED ME COME UP WITH THIS NAME FOR THE BLOG HEHEHEHE, IM GLAD YOU ARE ENJOYING THE BLOG, PLEASE KEEP READING, AND SHARING IT WITH ALL YOUR FRIENDS AND FAMILY. I WILL BE PRAYING FOR YOU TOO, GOD BLESS, WITH LOVE JACKIE
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November 21, 2010 at 4:59 AM
Jackie,
You are an inspiration to us all and God has used you, your faith as a powerful tool to give hope to the hopeless and those in darkness leading them to the light of Christ Jesus our Salvation. I will look forward to reading your post. Be assured that nothing goes to waiste with God and God can take that which to our eyes to be a bad situation and bring about good from it. You are and can be a powerful source of intercessory prayer though Jesus.
St. Paul states in 1 Colosians 1:24 “For now I rejoice in my suffering on your behalf, and I complete in my flesh the things that are lacking in the Passion of Christ, for the sake of his body, which is the Church”.
We know that nothing is laking in the price Christ paid upon the Cross so we know that St. Paul is not saying that Jesus did not do enough upon the cross. So, what is lacking that St. Paul can claim to make up for with his sufferings? The “what” that is lacking is each and every individual human beings response to accepting what Jesus did upon the cross for them. Their personal embrace of Jesus as Lord and Saviour is what is laking. That Said, St. Paul came to understand that nothing goes to waiste with almighty God, even his personal trials and sufferings and that he is able to unit his sufferings to the Cross of Jesus for abundent graces to be bestowed upon his fellow man that they may come to know Jesus and embrace him as Lord and Savior too.
Yes, our suffering can be united to the Cross, the sufferings of Jesus for the conversion of sinners and other needs that benefit our relationship and journey with God. We bring others to Christ, they accept him in their life, have their sins cleaned by the Blood of the Lamb, Yes, we participate in sharing the redeptive power of Christ upon the cross with our fellow man. So offer up and unite your suffering to Jesus and practice this powerful gift, this powererful prayer God has given to you, Redemptive Suffering, or as the old lady’s use to say, “Offer it Up”!
Use your gift to pray for me while you are at it. Yes, please pray for my friend Joe who has just found out he has incurable cancer. This is not a Joe you know but he is a fellow brother in Christ 🙂
In the Love of Jesus,
Marco
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November 24, 2010 at 10:37 PM
[…] can learn more about Jackie and her life on her blog TheBookofRoo. Categories: HolidaysPosted on: 25th November 2010 by: Amanda Respond « Dollhouse […]
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November 24, 2010 at 10:42 PM
thanks amanda
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November 27, 2010 at 3:43 AM
Jackie,I remember when I met you back when I was eleven years old!You were such a blessing to meet and talk to and now it is a blessing for me to read your blog!You have so much wisdom and such faith and such a beautiful heart.You are such an inspiration.May God bless you as you are blessing so many people!
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November 27, 2010 at 11:24 AM
hi yes i remember first time i met you too, you were so so sweet, and such a gifted child. i was happy to see you on facebook, and be able to catch up with you again, i have thought about you, and your family over the years, and no i never forgot any of you 🙂 no i havent writen a book but thats my goal is to write one, it is why i started this blog, am hoping to reach out to people, and try to get my name known a little bit more, so i can become a writer one day. please pray this all works and that GOD leads me to the right people. so far its going great 🙂
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December 15, 2010 at 5:11 PM
Jackie,
This is a truly inspirational website. Thank you for posting this video. I really needed this today. I do not know you but I believe you are a gift from God. Thank you for letting God use you send a message of inspiration to others.
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December 15, 2010 at 10:42 PM
@Lori Thank you so much for reading, I am so glad you enjoyed it, please keep reading, and looking at all the different pages, and catigories on my blog, there is lots to see, I write on it, every week, I was writing every day, but I am sick right now, and because of Christmas coming, I figure people maybe a little busy, so I dropped it down, to writing about once maybe twice a week. Thank you though, you are so sweet to say all that, and yes I thank GOD every day for giving me the idea to start this blog, I really enjoy doing it, and am so happy, that others are enjoying reading it, just as much as I enjoy writing it 🙂 Well god bless you. Love Jackie
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December 30, 2010 at 6:46 PM
Hi, Jackie. Thank you so much for sharing your story. You are such a great artist, what beautiful paintings you made! And I just want to wish to you and to your family a very blessed 2011 year from Brazil! Love, Camila (^_^)
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January 17, 2011 at 2:08 PM
Dearest Jackie,
You are an incredible wonder in OUR CREATOR’S UNIVERSE! Our SAVIOR suffered and to me, it is a privilege to bear the cross and inspire others to make a difference in their spheres of influence!
I am a college Professor with O.I.,(53 pounds) and I want to have you as my friend and if you want, call me any early morning and we can PRAY together! If you want, email me above and then I will email you back my phone number.
Thoughts, prayers and LOVE are with you and all in your sphere of influence.
Semper Fidelis,
Christinah
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February 1, 2011 at 11:31 PM
I just wanted to say that you are a true inspiration. I am a physical therapist practicing in Virginia. I have patients every day dealing with many different physical challenges, and I must say that you are such a strong individual!! May the Lord continue to give you strength…you have given me an important lesson of faith!!
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February 1, 2011 at 11:33 PM
awe well thank you for the encouraging words. GOD bless you and please pass this website on to all you know if possible 🙂
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February 15, 2011 at 12:46 AM
Hi Jackie,
I love reading your blog and enjoy your humor.
Keep up the great work!
xoxo
Ingrid
Co Founder
http://www.newhealthyattitude.com
ingrid@newhealthyattitude.com
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February 15, 2011 at 8:12 AM
THANKS SO MUCH 🙂
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June 20, 2011 at 12:48 AM
Jackie:
Shoc and Beckah (Shae) are mutual friends of ours. They shared the video they took while visiting your home with us. You are a true inspiration to us. The love of God and the joy that shines through you is awesome to see. I see God’s love in your eyes. Keep shining.
Wayne
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June 20, 2011 at 6:33 PM
THANKS SO MUCH FOR WRITING ME AND CHECKING MY BLOG OUT, I WRITE ON IT WEEKLY, AM HOPING TO KEEP IT GOING AS LONG AS I CAN, I LOVE WRITING, ESPECIALLY FOR THE LORD LOL.THE LORD IS MY EVERYTHING AND IS SUCH A BLESSING AND HAS DONE SO SO MUCH FOR ME OVER THE YEARS AND YES ONE OF THOSE THINGS WAS MEETING SHOC AND BECKAH SHAE. MEETING THEM WAS A HUGE BLESSING AND WAS VERY ENCOURAGING FOR ME AND I AM VERY GRATEFUL TO THEM FOR ALL THE HELP THEY HAVE GIVEN ME AND THE PEOPLE THAT HAVE COME IN TO MY PATH JUST BECAUSE OF THAT VIDEO AND THEM SHARING MY STORY IS JUST AMAZING. THE SAYING GOOD NEWS TRAVELS FAST IS VERY VERY TRUE LOL. GOD BLESS YOU AND THANKS FOR THE ENCOURAGEMENT. GOD IS SO SO SOOOOOOOOOOOOOO GOOD KEEP READING MY BLOGS HEHEHEHE LOL
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March 17, 2012 at 4:42 PM
What many of you don’t realize is just how amazing Jackie’s outlook REALLY is! Roo, I hope you don’t mind me saying this, but Jackie wrote this after having had surgery, getting an infection and being sick, losing her grandfather unexpectedly, and all the everyday struggles she regularly encounters. Girl, this is more than a comment on your blog! It’s a wonderful sermon!!!!!!! You never cease to amaze me in that you always have such a SONny disposition despite what goes on around you. It always makes me stop and count my blessings, because so many of us complain about the smallest things that in contrast are so trivial in reality to what really matters. As you quoted…. Count it ALL joy! Indeed we should take inventory of what we should be truly thankful for each and every day! I am thankful for you in my life! Thanks for the powerful Word! hoping to see you guys sooner than later! Lisa
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March 19, 2012 at 5:19 PM
Hi Lisa. You are so sweet for saying all this and of course I dont mind you saying it. Just so you and everyone know their will be a blog up by morning, where I will explain in more detail all of what GOD has carried me out of these past few years. So please keep watching for it cause I promise its worth the wait. There will be a video with it too lol. Lisa my mom wants you personally to know that me her and dad have had AWFUL AND I DO MEAN AWFUL colds the past 3 weeks which is why we never arranged for a new date to get together yet, I myself was back at the Doctors last week cause I could barely breath and was put on breathing treatments and pretnazone (steroids) so mom will call you the second we are better so we can have that get together, but she wants me to tell you. to please not think shes ignoring you or has left you hanging we just have all been soooooooooo sick here lol. Kristens baby being in daycare has braught lots of colds in to this house lol. This cold not only hit me and my parents but it also hit my brother, his wife, my sister, her husband, and the baby and us, and it all started from that cutie I call my neice lol. Shes going to be a year already april first isnt that crazy!!!! time just seems like its flying by. I still remember the blog and video I dedicated to her the week she was born 🙂 well have a blessed day Love ya guys
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May 19, 2013 at 11:47 PM
I prayed for healing and the pain to go away!!
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May 20, 2013 at 1:18 AM
Thank you I so appreciate the prayers 🙂
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July 19, 2013 at 1:45 AM
Hi Jackie, Thanks for leaving your comment on my blog. I think you are amazing. I have read your story and have been deeply touched by it. I will share it with Matt Yong when he can understand a little more english. :-)) XOXO
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July 19, 2013 at 3:12 PM
🙂
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September 28, 2013 at 3:08 PM
HI I JUST WANTED TO SAY I BEEN READING AND LISTENING TO YOUR UPDATES ON YOUR SON MATT YONG AND JUST AGAIN WANTED TO SAY AM PRAYING FOR HIM AND KNOW A LOT OF THE OBSTACLES YOU ALL ARE FACING ESPECIALLY WITH SURGERIES AND HAVING TO INTUBATE HIM, I HAVE HAD OVER 60 SURGERIES AND EVERY SURGERY THEY HAVE TOLD ME THE SAME THINGS THERE TELLING YOU GUYS ITS TO DANGEROUS AND MY AIR WAYS ARE JUST LIKE HIS, MY ISSUE ISNT FROM MY FACE BEING DEFORMED, BUT MY CHEST CAVITY IS VERY DEFORMED, I DONT KNOW IF YOU COULD SEE IN ANY OF THE PICTURES ON MY SITE, BUT IF YOU LOOK CLOSELY MY CHEST STICKS OUT AT LEAST MAYBE 6 INCHES OR MORE AND IT ALMOST LOOKS LIKE THE END OF A SNOW CONE STICKING OUT OF MY SHIRTS LOL, BUT ANYWAYS BECAUSE OF IT ITS VERY DANGEROUS TO BE TUBED AND GO THROUGH SURGERIES, ACTUALLY ABOUT TWO YEARS AGO ME AND MOM KEPT ASKING KIM AND HIS MINISTRY AND HANNAH TO PRAY OFTEN FOR ME BECAUSE AT THE TIME I DESPERATELY NEEDED A SURGERY AND WITHOUT IT I WOULD HAVE FOR SURE DIED, BUT NO DOCTOR WAS WILLING TO DO IT AT THE TIME, BECAUSE THEY FELT ID DIE ON THE TABLE AND DIDNT WANT THAT ON THEIR HANDS AT THE TIME THEY RATHER WAIT AND SO I EMAILED ALL YOU GUYS AND YOU PRAYED AND HAD SENT ME A MANTAL (SORRY IF IM SPELLING THAT WRONG AM A REALLY BAD SPELLER) LOL ANYWAYS WHEN THEY DID ALL THAT AND WHEN ME AND MY FAM CAME TOGETHER AND PRAYED, THE DOCTORS FINALLY APPROVED THE SURGERY AND I NOW CELEBRATED MY 27TH BIRTHDAY!!! SO JUST WANTED TO SEND AN ENCOURAGING WORD TO KEEP PRAYING AND BELIEVING MATT WILL GET THOUGH THIS. IF I DID ANYONE CAN LOL AGAIN AM PRAYING AND GOD BLESS YOU ALL ❤
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September 29, 2013 at 6:23 PM
Hi Jackie!
I will be praying for Matt Yong! Thank you for continuing to send us updates on PRAISING HIM and what is happening in your incredible LIfe!
HE LOVES you and I do tooooooooooooooooooo,
Semper Fidelis,
Christinah
Thought you’d enjoy this:
Matthew 18:10
King James Bible (Cambridge Ed.)
Take heed that ye despise not one of these little ones; for I say unto you, That in heaven their angels do always behold the face of my Father which is in heaven.
Aramaic Bible in Plain English (©2010)
Take heed that you do not despise one of these little ones, for I say to you that their Angels in Heaven do always see the face of my Father who is in Heaven.
We come into our world to develop character!
Imagine that an amazing messenger from our CREATOR blessed you on the day you were born.
“Welcome to Spaceship Earth, little one. You are starting out on your life mission. I want you to constantly remember that you are created in the CREATOR’S IMAGE and you are HIS child. He has created this world for your benefit and for you to have a place to grow and develop your character.
You will live your life one moment at a time. I bless you to appreciate and be grateful for life with every breath that you breathe. You will need to learn many things to make the most of your stay in the Earth. I want you to get off to a good start. So I bless you with four qualities. These four qualities will upgrade your self-talk when you learn to speak.
I bless you with JOY! Whenever you pray or read the Scriptures or study, do so with JOY! JOY will make every spiritual word and action more elevated.
I bless you with courage. Have the courage to fulfill your life’s mission. Don’t needlessly limit yourself with fear. I bless you to experience joy every time you do something you might fear.
I bless you with love, love for our CREATOR and love for being kind to people. Each word and act of kindness is another opportunity to experience more joy!
I bless you with serenity. That will give you an inner calm and a clear mind to be able to think wisely and creatively.
You will forget that you received this blessing living in planet Earth, but these benefits will always be with you when you bring them to your mind. For those of you that have children, you see how they react to reality……with JOY!
-Professor Rabbi Plishkin
James Madison was one of the signers of the CONSTITUTION; said, “Conscience is the most sacred of all property!” 29 of the signers were individuals who read the SCRIPTURES. Use your conscience, along with the qualities above to fulfill your mission in our world and you will come before OUR CREATOR with
“Well, done!” We are in a war between GOOD and evil. Do what’s right and have a clear conscience.
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May 6, 2014 at 8:08 PM
Hello Jackie,
Wow, just discovered your blog through a post on Facebook. You are amazing and I am in awe of your wonderful attitude and outlook. God bless you abundantly, and may He bring your dream of writing book to fruition one day soon.
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May 6, 2014 at 10:31 PM
Jackie, I just want you to know youre amazing courage is contagious. Just hearing of your story I am so inspired by your strength I hope you know what an amaing inspiration and life changer you are. Ive been dealing with a lot for a very long time and I haven’t known how to get through it, but when things get hard you’ve shown me to still love and put my faith into God. Youa re a world changer & absolutely a champion ❤
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May 6, 2014 at 11:04 PM
Just wanted to say you’re a great writer and blogger. Have a great evening! -Dawn
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July 8, 2014 at 6:02 AM
Je sսis arrivée sur ton site web par mégarde puis
je ne le regrette point !
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August 14, 2014 at 12:14 PM
You go Jackie you are a inspiration to all that know you, and to know you is to love you, always pressing through, always encouraging even when you are hurting and nobody can understand your pain except JESUS. We love you with all our hearts and keep doing the DO, never stop, for you are that light in the darkness of our lives that helps brings hope, love, and encouragement, you Jackie are what is best in our broken lives always bring a smile. That’s who you are, not only a reflection of your Mom and Dad but of your heavenly FATHER Jesus Christ. Were so proud of you 🙂
Love T.R. Lisa
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August 14, 2014 at 2:16 PM
THANKS GUYS LOVE YOU TOO ❤
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November 30, 2019 at 5:23 AM
Hello Jackie. I’m overwhelmed with awe “hearing” your story and thoughts. I’m Deaf completely and have been since age 5. (I’m 67 now) But that’s nothing compared to what you got. Yeah but we got God too!
You are blessed. Thanks for sharing.
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