Tips and Suggestions About How to Live with OI. (Especially Dedicated to New Moms)

HI GUYS ITS ME AGAIN I’M STILL LEARNING HOW THIS ALL WORKS AND I THINK SO FAR I’M DOING WELL. I JUST WANTED TO ADD A PAGE TO THE BLOG FOR PEOPLE TO BE ABLE TO WRITE ME ANY COMMENTS OR QUESTIONS THEY HAVE ABOUT O.I I BEEN GETTING ALLOT OF EMAILS ESPECIALLY FROM NEW MOTHERS ASKING ME QUESTIONS AND WANTING OPINIONS ABOUT O.I AND THEY ALL FEEL LIKE ME THAT THERE’S ABSOLUTELY NO WHERE TO GO TO LEARN AND TALK ABOUT O.I OR TO GET LITTLE TIPS AND SUGGESTIONS ON HOW TO CARE FOR BABIES WITH O.I SO ID LIKE TO START A PAGE ON THE BLOG TO HELP OUT NEW MOMS AND GIVE THEM SUGGESTIONS ON HOW TO HANDLE CERTAIN THINGS THAT MAY COME UP WHEN CARING FOR A BABY WITH O.I, HOW I’M GONNA START IT OUT FOR NOW IS GIVING ONE TIP EVERY DAY. SO TODAY’S TIP OF THE DAY FOR CARING FOR A CHILD WITH O.I IS DRUM ROLL PLEASE LOL.

TAKING THE TIME TO MAKE UP SMALL SIGNS THAT EXPLAIN THE DISEASE. SEE ALLOT OF PEOPLE HAVE ISSUES WHEN THERE ADMITTED IN TO THE HOSPITAL, BECAUSE THIS DISEASE IS SO RARE THAT NOT EVEN THE NURSES AND DOCTORS KNOW ABOUT IT, AND DON’T KNOW HOW TO CARE FOR PEOPLE WITH O.I BABIES ESPECIALLY. I KNOW MY MOTHER WAS ALWAYS SCARED TO DEATH TO LEAVE MY BEDSIDE SHE WOULD EVEN BE AFRAID TO GO TO THE BATHROOM, BECAUSE WHAT HAD STARTED TO HAPPEN IS ANY TIME SHE LEFT A NURSE WOULD COME IN AND TRY PICKING ME UP OR DOING SOMETHING TO CARE FOR ME OR THE BIGGEST NO NO FOR MOST PEOPLE WITH O.I IS TAKE A BLOOD PRESSURE!!!!  FOR BABIES WITH O.I THAT’S A HUGE NO NO, BECAUSE WHEN THEY TRY TO TAKE IT, IT DOES WHAT? IT SQUEEZES YOUR ARM OR LEG AS TIGHT AS IT CAN AND SO FOR O.I BABIES AND FOR ME ESPECIALLY IT JUST CRUSHES THE ARM OR LEG AND WHAT HAD STARTED TO HAPPEN IS EVERY TIME MY MOM WOULD LEAVE  A ROOM THE NURSES WOULD TAKE MY BLOOD PRESSURE OR TRY TO CHANGE MY DIAPER AND FOR BABIES WITH O.I YOU CANT CHANGE A BABY LIKE YOU WOULD AN AVERAGE BABY, SO WHAT MY MOM HAD STARTED TO DO CAUSE EVERY TIME SHE LEFT ROOM THE NURSES WOULD BREAK SOMETHING OF MINE SO WHAT MY MOM DID WAS HAD SIGNS MADE UP SAYING BRITTLE BONES AND THAN SAYING PLEASE DO NOT CHANGE HER OR TAKE HER BLOOD PRESSURE AND THAN WOULD GO IN TO WHY ON THE SIGN, SHE POSTED THESE SIGNS EVERYWHERE, SHE USED TO PUT ONE ON THE OUT SIDE OF THE DOOR RIGHT WHERE THE CHARTS LAY SO PEOPLE WOULD SEE THEM AS YOU COME IN, AND THAN SHED POST ONE ON THE DOOR AND ONE ON THE INSIDE OF THE DOOR THAN SHED PUT ONE ON THE BED AND ONE ABOVE THE BED LOL SO EVENTUALLY EVEN IF THESE NURSES WERE BUSY AND DIDN’T PAY MUCH ATTENTION THEY WOULD STILL SEE THIS EVENTUALLY LOL. SO YEAH THAT’S MY SUGGESTION FOR TODAY SIGNS SIGNS SIGNS THEY DID WONDERS FOR ME LOL. HOPE THIS SUGGESTION HELPS PEOPLE, ILL BE ADDING ANOTHER ONE TOMORROW. GOD BLESS ALL WHO READ THIS BLOG ONCE AGAIN AND THANKS FOR YOUR TIME ALSO IF YOU WANT TO TALK TO NEW MOMS OR PEOPLE WITH O.I AND START YOUR OWN CONVERSATION WITH SOMEONE OTHER THAN ME JUST IN CASE YOU GET SICK OF HEARING MY VOICE LOL PLEASE KNOW YOU CAN DO THAT RIGHT HERE.  🙂

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