Archive for the ‘MY LIFE AND WHO I AM’ category

CELEBRATION OF LIFE!!! (A THANKFUL HEART)

May 9, 2011

 PSALMS 107:1

GIVE THANKS TO THE LORD, FOR HE IS GOOD; HIS LOVE ENDURES FOREVER.

Hi all. I am so sorry I have not wrote anything since easter 😦 I do have some good excuses though lol (laugh out loud).  I really wanted to write a blog about Wishbone day! (ill explain what Wishbone day is in a second).  Sadly Wishbone day was on Friday May 6th, so I did not get to writing the blog in time for it 😦 so for now ill still just give a brief explanation, about what Wishbone day is.

You see, Wishbone day, is a day where people with OSTEOGENESIS IMPERFECTA (brittle bone disease) the disease I was born with and battle every day.  Come together from all over the world!! and wear yellow to show awareness for the disease.

More importantly, Wishbone day, is a day to celebrate our accomplishments and to celebrate Life, and it’s a day to show people that we really can do all things through Christ who gives us strength and that yes, with GOD all things really are possible.

 For those of you who may be  new readers and may not know much about this disease, let me briefly tell you a little bit about it.  It is a brittle bone disease, The bones do not grow right and it is a disease where people can break bones daily!!

There are different types or severities of the disease.  The type I have is one of the most severe types.  I break my bones every hour!! people ask me all the time if when I break my bones, is it as painful as it would be for any average “Healthy” person? my answer to that question is, yes!!!!!! the pain you all feel when you break a bone, is the exact same as the pain I or anyone with Osteogenesis Imperfecta feels, the difference is, what it takes to actually break the bones and then the way they heal.

 For instance, you all may break your bones by falling off a bike, or getting in to a car accident, where I on the other hand would break my bones by coughing or just taking a deep breath.  Thats Osteogenesis Imperfecta in a nutshell lol (laugh out loud).

 The reason I did not get to doing this “Wishbone day blog” is because,  First I was sick,  and than my computer started crashing on me, so I could not get online much.

The Video above is my own creation!!! it took me four days! to do this video,  Because of my computer being so messed up lol (laugh out loud).  But hey at least I got it done, right? right lol.

My first intentions for doing this video, was to show my support for OSTEOGENESIS IMPERFECTA and Wishbone day (awareness day).

Sadly my computer did not cooperate with me and Wishbone day came and went lol (laugh out loud), and at first I was kind of disapointed and I was going to scratch the whole project. than I went online and seen all the amazing things my friends and family did to support Wishbone day,OSTEOGENESIS IMPERFECTA and me.

I also seen all the stuff other families, from all over the world!! were doing, and I was very touched and in that moment the LORD spoke to me and told me to continue creating this video and guided me into a new direction and path.

Other than mentioning Wishbone day, I really did not know what to write  about until just now that is.  As I was reading the words that I was writing and thinking in my mind about what I went through trying to make this video on my” junk” of a laptop lol (laugh out loud) I felt the LORD speaking to me and telling me to write on PATIENTS!!!

My computer kept freezing every twenty to thirty minutes, while I was making this “Wishbone day” video, which means, I had to keep restarting  everything every twenty to thirty minutes.  I was getting so annoyed at times that ill admit, I definitely had some ungodly thoughts going on in my head about this laptop and video lol (laugh out loud)

And I so wanted to just give up on this thing and forget that it ever existed and I soooo wished, I had never thought of making it to begin with.  But than as I was looking at all the pictures of people with Osteogenesis Imperfecta and hearing all their stories about all the things they have overcome in life

And than thinking about all i’ve overcome.  I thought to myself, heck no, I have never given up on anything before, so something as small as this for sure is not going to scare me away or break me.

I kept at that video till it was perfect!! I could have chose to give up, that would have been the easy thing, right? no we cannot allow anything in life to scare us away, we keep fighting for our goals, we keep pressing forward.

If you do research on all the people with Osteogenesis Imperfecta, you will see how many things these people (including me) fight for, on a daily basis.  If there is something you want in life, FIGHT for it, I hate when I hear Christians say: well I was trying for this, or that, but it just didn’t happen, so I guess that means GOD has other plans.

Well yes that could be true for some people and some situations, but there are also times where I think, we are stopping our selves from getting what we want in life, because we can be so impatient.   Some Christians and people in general just want everything NOW!.

And yes there are times GOD does make things instantly happen, but there are other times where we need to fight for things, fight for  L.I.F.E. Why do you think the bible says in EPHESIANS 6:10-18.

Finally, let the LORD make you strong. Depend on his mighty power.  Put on all of GOD’S Armor.  Then you can stand firm against the devil’s evil plans.  Our fight is not against the rulers, the authorities and the powers of this dark world.  It is against the spiritual forces of evil in the heavenly world.

So put on all of GODS armor.  Evil days will come.  But you will be able to stand up to anything.  And after you have done everything you can, you will still be strong.  So stand firm.  Put the belt of truth around your waist.

Put the armor of Godliness on your chest.  Wear on your feet what will prepare you to tell the good news of peace.  Also, pick up the shield of faith.  With it you can put out all of the flaming arrows of the evil one.

Put on the helmet of salvation.  And tale the sword of the holy spirit.  The sword is God’s word.  At all times, pray by the power of the spirit.  Pray all kinds of prayers.  Be watchful, so that you can pray.  Always keep on praying for all of God’s people.

So see don’t you get it? there are times the enemy comes in to attack, kill and destroy, (even in the small things) but we cannot back down.  We need to FIGHT!!

In a part of the video I made, you will see it says: DON’T EVER GIVE UP! if you just Abide and stand, you’re greatest victory is at hand.  I got that saying from Beckah Shae.  I think it’s awesome.  We all just need to keep doing what I did with that video and instead of just giving up right away, like we do.  We need to pray and have GOD help and lead us through.  Just like he lead me on how to make this video work still.

I was talking to someone the other day that was a little discouraged about something and she kept saying: I just don’t think I could do this anymore.  I told her the same thing I am about to tell you, the word cant is not in my dictionary, I hate that word and I hate hearing people say it.

GOD gave us free will, which means everything in life’s a choice.  Yes some things may be harder to do and you may have to give every ounce of strength thats in you to do it, but you can! cause again we can do all things through christ who gives us strength.  So keep fighting for L.I.F.E.

Before I end this weeks blog, I would like to give a special thank you to my friend Laura Clemente and all the people from all three of the LA BARBERIA SALONS and all the people from LABARBERIA  INSTITUTE OF HAIR (IN CLEVELAND OHIO).  Thank you all so much for supporting me in making Wishbone day heard

And also thanks for letting me share a little bit of my heart with you all.  Laura you have known me for probably close to 20 years now and you have been an amazing friend. Thanks for everything you have always done for me 🙂

Also happy belated Mothers day to all the moms out there.  Mom you have been amazing and have given your entire life to care for me, I will always be grateful for having you in my life, your the best!

Enjoy Life all be grateful for everything GOD has given us.  That is what Wishbone days about Celebrating LIFE, SO COME ON ALL LETS CELEBRATE, BY PRAISING OUR GOD FOR GIVING US LIFE AND LIFE MORE ABUNDANTLY.  WELL THATS ALL GOD GAVE ME FOR TODAY.  SEE YOU NEXT WEEK ALL. GOD BLESS AND REMEMBER I LOVE YOU AND MORE IMPORTANTLY JESUS LOVES YOU 🙂

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BLESSED!!! (DEDICATED TO MY ENTIRE FAMILY)

April 6, 2011

NUMBERS 6:24-26

THE LORD BLESS YOU AND KEEP YOU;

THE LORD MAKE HIS FACE SHINE ON YOU AND BE GRACIOUS TO YOU;

THE LORD TURN HIS FACE TOWARD YOU AND GIVE YOU PEACE

Hi all.  Well this week has been one crazy week!!! I am sorry I didn’t do a blog this week, its been very hectic here.  I have lots of announcements, some good some bad lol.  Lets see where do I begin? Well to start with, the guy from Gospel innovation kept his promise!!! he made me 3 different banners/logo’s to pick from, but I am in love with all 3 and am having a awfully hard time deciding which one I want to become the official THE-BOOK-OF-ROO banner/logo, so I am asking all my THE-BOOK-OF-ROO people to help me out and vote for which banner/logo you like best, to vote just go to this website  http://www.pollsb.com/polls/p2182308-poll_the_book_of_roo_decided_upgrade_the

The second announcement is, I became an aunt for the first time! a baby girl!! she was born this past Friday April 1St she is so cute and my first name is her middle name isn’t that cute? 🙂 she has inspired me to make the video above that is of my family, please watch this video you will all love it 🙂

The third thing is more a prayer request than an announcement, but after the baby was born, me and my mom planned on spending most of the week at my sisters to get to know the new baby, but sadly on our way to the hospital the day after she was born, we all heard this big POP  and later we found out that Popping sound came from our van!! I do not know all the technical details, but bottom line is after 13 years our van finally gave out on us 😦 so I am asking, no I am begging, please all be praying for us, that some way or another GOD works some kind of miracle and we our able to get a new van!!!

You know these past few days the LORD has really been teaching me how to enjoy the many blessings HE gives us freely every day. When that van broke down, sure me, mom and dad could of got angry and let that ruin the babies home coming and we could have let that take our JOY away, but we didn’t, because we knew what was important, we knew what mattered and that was that my sister and her baby were healthy and on their way home!!!  I may not be rich in material things but I am rich, I am blessed with things that are much more important.

It took a lot of strength and courage for my sister and her husband to go through with having a baby, because for a very long time we were not sure how safe it was for her to have one, because of all my medical issues.  You all have heard me say before that the past 3 years have been hard and I have been sick  and have been through a lot and been in and out of the hospital, but the one good thing that came out of all that, was the fact that since I was in there so much, my sister had asked me if I wouldn’t mind getting a genetic DR to come look at me, of course I said no problem, my sister would do anything for me so its the least I could have done for her.

So the Doctor came and did some blood work, and through all that we found out which type of Osteogenisis Imperfecta I had and also found out that the type I had was not a hereditary thing, it was not something that could get passed down to any future baby!!! which was a huge relief to my whole family including me.

I am very thankful for my life and have no complaints but I do know how hard it is to live with Osteogenisis Imperfecta, not just on the person with the disease, but also for the entire family.

Having a disease of any kind really does transform the entire family.  All I can say is you have the choice as to how it transforms you? Me and my family choose to have it make us stronger!!

Like you all have heard before I was not supposed to live past 10 days!!! 10 days!!! there were so many things I was told I would not live through.  So many times I was told I would not have the chance to experience LIFE.  I never in a million years thought I would out live family members and friends that I loved.

Never did I think id have a chance to experience the things in life that I have been blessed to experience.  I remember as a kid praying and saying OK GOD just need to make it a few more years to see my brother get married and than id say OK GOD a few more years to see my sister graduate, and so on and so on.  I have always been at peace and have known that my life is in GODS hands and whatever happens, happens.  What if GOD didn’t answer my prayers? what if he did take me home before I had a chance to see my niece, or my brother and sister get married? would I have been mad? would I have felt like GOD was a failure? Heck no!!! we can not control time, GOD is in control of my life, always has and always will.

My friend who I had asked you all to pray for a few weeks ago, the lady who was in the I.C.U, well she is home and doing fantastic.  She is doing so well that she actually had told my mom to tell me to read Psalms 91. Does anyone know Psalms 91?

Psalms 91 says: Whoever dwells in the shelter of the Most High will rest in the shadow of the Almighty.  I will say of the LORD, “He is my refuge and my fortress, my God, in whom I trust. ” Surely he will save you from the fowler’s snare and from the deadly pestilence.  He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart.  You will not fear the terror of night, nor the arrow that flies by day, nor the pestilence that stalks in the darkness, nor the plague that destroys at midday.

A thousand may fall at your side, ten thousand at your right hand, but it will not come near you.  You will only observe with your eyes and see the punishment of the wicked.  If you say, “The LORD is my refuge,” and you make the Most High your dwelling, no harm will overtake you, no disaster will come near your tent.  For he will command his angels concerning you to guard you in all your ways;

they will lift you up in their hands, so that you will not strike your foot against a stone.  You will tread on the lion and the cobra; you will trample the great lion and the serpent. “Because he loves me,” says the LORD, “I will rescue him; I will protect him, for he acknowledges my name.  He will call on me, and I will answer him; I will be with him in trouble, I will deliver him and honor him.  With long life I will satisfy him and show him my salvation.

When I read that I was reminded of when I was younger and how any time things would get really bad, or scary, my parents and my one friend would read that scripture to me.  People ask me all the time why I think I have lived as long as I have? My answer is right there in Psalms 91, read it carefully and you will understand, it says: whoever dwells in the most high, which means whoever dwells in him will be under the LORDS covering.

So again we have a choice? we can dwell on the good or dwell on the bad? But if we dwell on the good, if we dwell on L.I.F.E the LORDS hand will be on us, no disease, no harm, nothing can touch us and we will have long LIFE in JESUS!!!

I am going to enjoy every minute I have and not waste time dwelling on stupid negative unimportant things.  What is important is L.I.F.E and what you do with it, you can be a blessing, a blessing to L.I.F.E, a blessing to the world.

L.I.F.E (LOVE IN FULL EFFECT) lets make a difference in this world, lets stop living in fear and get out our armor and sword and fight for L.I.F.E!!!

I am blessed because I have a family that loves me

I am blessed because I have a roof over my head and people who care for me

I am blessed because I am experiencing what L.I.F.E is

I am blessed because I have an amazing team of doctors who care for me

I am blessed because CHRIST carried my cross and died for my sins

I am blessed because I have the LOVE OF CHRIST IN ME

THAT’S IT FOR TODAY ENJOY ALL. GOD BLESS

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