Archive for the ‘MY LIFE AND WHO I AM’ category

DEATH HAS NO GRIP ON ME…(THANKFUL FOR HIS SAVING GRACE)

November 26, 2016

The book of roo

PSALM 116:3-4

THE CORDS OF DEATH ENTANGLED ME, THE ANGUISH OF THE GRAVE CAME OVER ME; I WAS OVERCOME BY DISTRESS AND SORROW. THEN I CALLED ON THE NAME OF THE LORD: “LORD, SAVE ME!”

Hi all. So this article should not be to long. I just really wanted a chance to update you on everything that’s happened since August and the victory I achieved once again!

Not to long after I wrote my last article (to read previous article Click here) all the medical issues I mentioned in that article got Ten times worse. So bad I finally told my Doctors I could not take it anymore and something had to be done! I was doing everything that was humanly possible to just fight through the symptoms. Because the options the Doctors had for me, were all extremely risky, and they all involved major Surgery. So we all, including myself, felt the risk was to high and not worth it. Everyone (including myself) felt, if I were to go through with most of the Surgeries they had on the table for me. They would probably have killed me, and if they did not kill me they definitely would have destroyed the life I have now. But than in July my symptoms just started getting so extreme I could not take it.

I was practically crying myself to sleep every Night for at least Two Months. Because I was doing all I could to fight through everything, and knew if I chose Surgery my life would probably end. Honestly if this was any other time in my life,.I would have been ok with that, not because I was ok with “dying” but because I knew where I’d be going and knew my ultimate goal in life is to be with him (Jesus) anyways . So if this was any other time I would have taken the risk in a heart beat, but in this moment I just felt if my life ended, it would have ended before it was supposed to. I had so many things in my life I was not willing to give up yet, and so many things I had worked so hard to achieve, like this Book. I felt like if I were to have died now, it would have been like loosing a race at the finish line. Everything inside me was just not willing to accept that my life could end. But yet I was very conflicted and I will admit I think I let fear grip me a little.

I tortured myself and my body for almost Six Months. Trying to fight these symptoms I was having. Because I did not want to go through another risky Surgery. But than in July things just got, like I said, Ten times worse. My Stomach felt like a Rock was inside it again, and the fluid that was building up in my Brain was getting so extreme. All I wanted to do was sleep, but yet I couldn’t sleep because I was so uncomfortable. I couldn’t watch tv, I couldn’t read and my eyes felt like they weighted a Billion pounds.  After awhile I had even realized my face was starting to swell a little too.

So after I wrote that article in August and after my 30th Birthday. I prayed, and after my time in prayer. I felt even though I didn’t want to, I had to go through with Surgery. So I sat down with my Parents and all my Doctors, and I told them I’m sorry but you have to do something, anything. I was willing to take the risk because I felt the Lord was telling me I was dying with or without the Surgery and at that point I felt. As risky as the surgery was, doing nothing was more risky. I had no doubt in my mind if they did not do something soon than that would be it, my life would have been over.

After having a long talk with my Doctors. I did finally get them to agree that something had to be done, and I was so relieved they were willing to try. At least I was relieved for about Twenty Seconds LOL. Than in the middle of the Doctors appointment as the Surgeons were telling me their plan. I hear the Lord saying: no, that plans going to kill you, tell them to do this….

The Lord than laid out this whole plan that he wanted me to suggest to the Doctors. I won’t explain all the details because most probably won’t understand it anyways LOL but bottom line really is. The Doctors wanted to move my Shunt and instead of having it drain in my Belly. They wanted to go in the Vein that’s in the Neck, the one that’s connected to our Heart.  They wanted to connect the Shunt tubing to that Vein so than the extra fluid in my Brain would just get absorbed into my Blood stream.

The Lord on the other hand kept telling me not to have them do that and instead have them go in my Belly and basically do the same Surgery they did in 2012. Which is go in cut as much Scar Tissue out as possible and than move the Tubing to the Shunt over a little. The Surgeons did not agree with that plan at all at first. Because the more you cut out Scar Tissue the worse it gets. The Doctor explained it as being like a Snake. You can cut a Snakes tail off over and over, but it will continually grow back.

That is how Scar Tissue works, the more you cut it, the more it will grow back. The Doctors were also worried about how little room I have left inside my Belly. I have so little room left inside my Belly. That they were worried they may not be able to even fit their instruments in there to be able to cut Scar Tissue out. Without the risk of damaging my Organs.  The Doctors also did not want to go through with that plan because it was not a “fix” it was basically just a way to buy time. But the Lord kept telling me it was ok. Because number One, no matter what treatment plan I chose nothings technically a “fix” every plan on the table was just a way to buy time. But the important thing at this point is what plan would benefit me the most.  The Lord kept telling me I did not have to worry about the future, I just had to worry about this moment.

After the Doctors gave their plan I than nicely asked them and my Parents why we couldn’t do the plan I knew the Lord was showing me. Of course I didn’t tell them it was what the Lord was telling me. I just asked why we couldn’t cut the Scar Tissue out? That’s when the Doctor told me about it growing back faster and stronger the more you mess with it. So I just shut up at that point cause I didn’t know what to do and I felt they were going to do what they wanted no matter what I said. Because their the Doctors and they know better than me.

After the Doctors got done giving their plan they asked if they could leave the room for a Minute. They wanted to go look at my Scans One more time. So while they were looking at the Scans I just started praying and I told the Lord. Lord of course I trust you more than anyone but I don’t know how to get them to trust you, or me for that matter. So if this plan that you keep telling me about really can help me live. Than speak to those Doctors Hearts yourself and change their Mind.

The Doctor comes back in and is continuing to say that they want to go through my Neck and to the Vein connected to my Heart. And as their talking I’m just saying to myself oh come on Lord speak to these Doctors Hearts. Than all of a sudden the One Surgeon sits down and starts staring at my Belly and says: well if you really want to go in the Belly, I guess I’d be willing to try, but I can’t make any promises. Now let me remind you when he said all this I hadn’t said One word, I never asked them about going through my Belly again, all I did was pray LOL. I knew the Minute the Doctor said he was willing to try. Than that meant the Lord was working it out already but just to be sure I responded by saying. Well your the Doctors you know best and he looked at me and said no this is team work. You and your parents know you’re body better than any one of us. So please don’t be afraid to say stuff we will listen. In that moment it’s like I felt an instant break through and I knew the Lords hands were on this. (Psalm 118:8) It is better to take refuge in the LORD than to trust in humans.

(As I told you all awhile back. When I hear certain songs, sometimes I get just as encouraged, ministered to or even learn from them as I do from hearing a good teaching or from reading the Bible and while I was in the midst of writing this article I found this album by a group called Unspoken. Two of the songs on the album are perfect for this article. When I heard a song called Miracle on the album I knew I had to share it in this article, it’s soo beautiful and powerful. Unfortunately I cannot post the song in the article like I’d usually do because I don’t have any rights or permission to do so, and I didn’t have the time to work my magic and try to get a hold of them for permission. But I at least wanted to share the lyrics with you all. This is lyrics to a song called Miracle by Unspoken, I encourage you all to go listen to this song)

LYRICS TO MIRACLE:

“Miracle”

Have you stopped reaching?
No longer seeking greater things
Have you forgotten you have a father listening?
He tells the sun when to rise
Gives the wind it’s breath
Swings a door wide open and moves in a moment you least expect

Don’t you give up on a miracle
You’ve got to speak the impossible
You’ve got to pray till you break through breaks through the ceiling keep on believing
Don’t you give up
Don’t you give up on a miracle

How many chances?
How many answers pass us by?
You know it takes faith to step on the waves when you’re terrified
So when you’re packed in a corner
And can’t wait any longer

Don’t you give up on a miracle
You’ve got to speak the impossible
You’ve got to pray till you break through breaks through the ceiling keep on believing
Don’t you give up
Don’t you give up on a miracle

Feels like the presents the words you’ve spoken
They go unnoticed like drops in the ocean
Just beyond the veil of your vision
Your mountains are moving, moving on
Remember the works his hand has done
Where you once were and how far you’ve come

Don’t you give up on a miracle
You’ve got to speak the impossible
You’ve got to pray till you break through breaks through the ceiling keep on believing
Don’t you give up
Don’t you give up on a miracle

You’ve got to speak the impossible
Pray till you break through breaks through the ceiling keep on believing
Don’t you give up
Don’t you give up on a miracle

Pray till you break through breaks through the ceiling keep on believing

The past Two or Three Years have been a rough one, not just physically but mentally. I have lost a lot of people who I never thought in a Billion Years would have passed before me. A lot of these people were people that had been praying for me and my life for Years. So I had a lot of anxiety about that too. Because I kept thinking, if these people who were healthy and strong died, than how could I think I’d live? I mean even the person who I considered to be my Pastor and who I had been following for Years passed away just Two-Three Weeks ago (Kim Clement).  He had been sick for over a Year. He had a lot of major health issues going on but it all started with a Brain Bleed. I remember just Days before he had his first Bleed. Actually I remember exactly when it was, Three Days. Just Three Days before He had his first Brain Bleed. I had contacted his team to ask if they all, including Kim, could please be praying for me. I explained to them how I was having issues with my Brain and how I was at risk of going through major Brain Surgery and also how I was at risk of my Brain being damaged. Never in a Million Years did I expect to open my Computer and find out that everything I was in fear of happening to me would happen to him. And now sadly this Month I found out he did lose his battle, and yes I know the good news is that he’s with our Lord Jesus Christ. But the bad news is it all happened way to soon. He had so much ahead of him. This man and his team had prayed me back to life more times than I could keep track of.

Sadly I have so many stories of people that passed away to soon and people who took part in helping me fight, people who helped me live. I’m not going to sit here and try to give some Christian cliche to try to explain it all.  Because the truth is I don’t know why this happened, I don’t know why it happened to Kim or the 6-7 other people I knew who lost their lives these past few Years. But One thing it did teach me once again, is how precious life is! I know you are all sick of hearing me say that by now, but it truly is. It also reminded me how even in the midst of a storm my God is still faithful!

When your someone like me, whose been battling life for Thirty Years. After awhile it becomes your normalcy. And after awhile no matter how serious things get you just assume or expect to make it through. Because you have made it so many times before. After awhile it’s almost like you become numb to the reality of how serious you’re health is. And it wasn’t until all these people had passed that I truly realized how fast life can be taken from us. Truly in a heart beat you could just be gone!! And I’ve realized that more lately than I ever had.

(Mark 13:32-37) “But no one knows about that day or hour. Not even the angels in heaven know. The Son does not know. Only the Father knows. Keep watch! Stay awake! You do not know when that time will come. It’s like a man going away. He leaves his house and puts his servants in charge. Each one is given a task to do. He tells the one at the door to keep watch.

“So keep watch! You do not know when the owner of the house will come back. It may be in the evening or at midnight. It may be when the rooster crows or at dawn. He may come suddenly. So do not let him find you sleeping.  What I say to you, I say to everyone. ‘Watch!’ ”

I had so many mixed emotions when they were wheeling me off to Surgery. In one breathe I was relaxed and calm. Because any time I kept thinking negatively. The Lord would give me visions, of me waking up after Surgery and being perfectly fine. In the visions I seen I was ok but yet I kept thinking of all these people I knew this year who believed just as strongly as I did and who were gone. Even in that very moment of me getting ready for Surgery. I had Doctors on every end of my Bed. Basically explaining all the different ways I could die! It took them exactly Fifteen Minutes to explain Six different ways that I could die, or be stuck on machines for Months, to  where I’d still eventually die! I mean we were so sure this time that some thing could actually happen. That I even made a list of all my Personal information, like passwords to all my accounts and where I had placed certain things. That’s how much I let fear grip me. And I have to admit after Surgery I was pretty disappointed in myself. Disappointed that I allowed myself to think such negative things and most importantly that I allowed the devil to almost win.

It was also very confusing because like I said. I had all these Doctors and my family preparing me for the worst. But yet every time I closed my eyes and pictured what life would be like after Surgery. I was perfectly fine, I was better than fine, I was better than I had ever been after a Surgery. Every time I’d start crying or I’d get scared, the Lord would give me that same vision. I just could not get that vision of me waking up laughing and talking and being perfectly fine, out of my head. I kept telling the Lord, Lord I don’t get it. All these people are telling me I’m basically dying but yet all you keep showing me is life! Even when they placed me on the operating table, I went to start crying again and I couldn’t because this wave of peace just came over me and all of a sudden I kept hearing a song (it is well with me) play in my head and every time I’d close my eyes I’d see myself waking up after Surgery and being totally fine. In the vision I could even hear myself saying: I don’t get it, this was supposed to be one of the worse Surgeries I’ve had, but yet I am totally fine I’m not even drowsy from the anesthesia!

(Psalm 121:7-8) The Lord will keep you from all harm— he will watch over your life; the Lord will watch over your coming and going both now and forevermore.

(Lyrics to the Second song by Unspoken that I mentioned earlier. That I felt was perfect for this article. So I just had to share them too, and again I encourage you all to go get this album. It ministered to me so much this week)

LRYICS TO THE CURE:

“The Cure”

We’re all related, brothers and strangers,
The king and the beggar bleed the same.
We’ve all got a sickness, a terminal condition,
We medicate it but the pain won’t go away.

See the eyes of a million faces,
Looking forward in a million places,
Only one can save us, Jesus.

You are the cure!
Everybody’s searching for it,
Everybody’s reaching out,
Trying to grab a hold of something real.
You are the cure!
Only you can satisfy us,
Fill up the void inside us,
Never been a heart you couldn’t heal.

You are the cure…

You are the doctor, healer and father,
To the orphan without a home.
We feel in the darkness, lost till you found us,
You are the remedy we’ve been looking for.

You are the cure!
Everybody’s searching for it,
Everybody’s reaching out,
Trying to grab a hold of something real.
You are the cure!
Only you can satisfy us,
Fill up the void inside us,
Never been a heart you couldn’t heal.

You are the cure…

Cure for the broken, the hope for a hopeless world.
The meaning, the purpose, the peace that will make us whole.

Don’t have to search no more.
Don’t have to search no more.

You are the cure!
Everybody’s searching for it,
Everybody’s reaching out,
Trying to grab a hold of something real.
You are the cure!
Only you can satisfy us,
Fill up the void inside us,
Never been a heart you couldn’t heal.

You are the cure…

You are the cure, cure
Never been a heart you couldn’t heal.
You are the cure, cure
Never been a heart you couldn’t heal.

When I came out of Surgery I experienced the exact same things the Lord showed me in that vision, even down to saying what I heard myself say about how amazed I was that I wasn’t drowsy. When I woke up I was totally fine, I wasn’t in pain, I wasn’t drowsy, I wasn’t anything but myself. When I went in to Surgery they told me to expect to wake up in the ICU (Intensive Care Unit) but because I did so well after Surgery they ended up bringing me straight to a regular room! Not only did they bring me to a regular room, but they also told me, I was doing so good they felt I could have probably gone home if I wanted to. Thank God they didn’t actually send me home, because I did end up having a small reaction about Fifteen, Sixteen Hours after the Surgery. But even the reaction I had, had nothing to do with the Surgery. It more had to do with the fact that I had gone so long without eating or drinking or taking my medications that I take on a regular basis. That My body just kind of spiraled out of control for a Minute.

I had gotten so sick before Surgery that I went without eating anything for a good Four Days! So between not eating or drinking or taking any of my meds. Things just kind of caught up to me. But as far as the Surgery went, I was One Hundred percent fine. Me and my Family and even my Doctors were on top of the world. They were just as relieved as I  was and once again they all just shook their heads wondering how I did this once again. How did I fight sickness and death again? They all keep telling me how strong and how much of a miracle I am and I agree my life is a miracle. But as far as me “Jackie Yafanaro” being a miracle. Heck no, I’m no miracle, but I do know the miracle maker and that’s my Lord Jesus Christ. He is my life support and he continually saves me and keeps me breathing and because of that I will never doubt!

I may not understand why I keep living when all these other people around me passed away. But like I said in my last article. I do not need to have all the answers. When my time finally does come and I do see my kings face. I’m sure all those questions will be answered, but for now, I not only believe, but I know he is faithful and even during times of uncertainty he’s still faithful. Sure I may have a lot of questions about certain things but I don’t and never will have doubt. How could I after all he’s done for me and all I’ve experienced in life.

There are so many people in this world who I see who are focusing their time on nonsense, who are letting fear take hold of them and hiding behind pointless garbage. And it is so sad to see because I just want to say, if you’d only trust. That’s all it comes down to, trust. I know I said that in my last article too, but again I’ll say. As simple as that sounds that truly is what it’s about  TRUST, trust even during your storm. He loves us so much and I feel it more now than I ever have.. times so short don’t waste a second of it. Get beyond your fears and doubts and do what your called to.

Thats really all I have for today, like I said I just really wanted to update you all and tell you the miracle that is LIFE!

( Psalm 63:3) Because your love is better than life, my lips will glorify you.

Ok guys just a few announcements before I go. As I himted earlier in the article I am writing and publishing a book and I am planning to begin the publishing stage at the beginning of the new Year. But as I have said before publishing a book is not cheap LOL. Thankfully because of the amazing Birthday party my family had for me in August. I was able to raise a little more then half the funds I need for the book. So now I truly am SOOOOOO CLOSE!!! So if anyone that reads this could find it in their Hearts to become a part of my Patreon Campaign I’d really appreciate it.

The Patreon campaign is basically a partnership. There’s different dollar amounts you can commit to giving. There’s one as low as $5.00 and what I like about this program is, it is not just about giving,  it’s about giving and receiving. To all those who commit to giving. There are different prizes/gifts you all get in return for giving. For example: Anyone who commits to donating $50 a Month. I will send you a THE-BOOK-OF-ROO magnet, a OI CAN DO ALL THINGS wristband and I will give some Perfectly Posh Products . That’s just the $50 level rewards but there’s some other great rewards on the site too (plus anyone who joins no matter how much they commit to giving. They will automatically be among the first to receive my book)  So check it out Patreon Partnership Page.

THE-BOOK-OF-ROO has options now! If you all are looking for a way to reach me on a more personal level, or maybe want to send a cash donation you can do that now. Please send any cards/Letters/Gifts to this PO Box. PO BOX: THE-BOOK-OF-ROO
4496 Mahoning Avenue #911 Youngstown, OH 44515

Please remember you can still also donate by clicking the donate button that is located at the bottom of this and all other articles located on THE-BOOK-OF-ROO.

I THINK THATS IT FOR TODAY. IF I DO NOT SEE YOU ALL BEFORE THE HOLIDAYS PLEASE HAVE A BLESSED AND MERRY CHRISTMAS AND NEW YEARS.. THANKS FOR READING AND SUPPORTING ME AND THE-BOOK-OF-ROO. GOD BLESS AND PLEASE REMEMBER KEEP SHINING FOR CHRIST. BECAUSE HE NOT ONLY LOVES YOU, BUT ADORES YOU. ALSO PLEASE REMEMBER IF YOU NEED PRAYER I AND THE-BOOK-OF-ROO READERS ARE HERE TO PRAY. JUST STOP BY OUR PRAYER PAGE AND POST YOUR PRAYER REQUEST AND I PROMISE WE WILL PRAY 😇 ALSO PLEASE REMEMBER AS I SAID EARLIER, RUNNING THIS WEBSITE AND WRITING/PUBLISHING A BOOK DOES ALL COST MONEY TOO. SO IF YOUR FEELING LED DURING THIS HOLIDAY SEASON PLEASE DONATE TO MY SITE. ITS VERY EASY TO DO. WE HAVE MANY OPTIONS NOW BUT THE EASIEST OPTION IS JUST TO CLICK THE “DONATE” BUTTON AND FILL OUT THE FORM, THATS IT. PLEASE KNOW I AM GRATEFUL FOR EACH AND EVERY DONATION THAT COMES IN NO MATTER IF ITS THROUGH THE PATREON PAGE, PO BOX OR PAYPAL. GOD BLESS, I LOVE YOU ALL AND MORE IMPORTANTLY JESUS LOVES YOU. KEEP ON SHINING FOR CHRIST ❤️

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10,227 = BLESSD

August 14, 2014

The book of roo

PSALMS 23:4-6

EVEN THOUGH I WALK THROUGH THE DARKEST VALLEY, I WILL FEAR NO EVIL, FOR YOU ARE WITH ME; YOUR ROD AND YOUR STAFF, THEY COMFORT ME. YOU PREPARE A TABLE BEFORE ME IN THE PRESENCE OF MY ENEMIES. YOU ANOINT MY HEAD WITH OIL; MY CUP OVERFLOWS. SURELY YOUR GOODNESS AND LOVE WILL FOLLOW ME ALL THE DAYS OF MY LIFE, AND I WILL DWELL IN THE HOUSE OF THE LORD FOREVER 

Hi all. I been trying to think of things to write about and I had been praying and praying but the LORD had given me nothing, and so that is why I have not wrote, because I told you all from day one I only want to be writing what GOD lays on my heart to write, and so all week, really all month I felt guilty for not writing,

Than Sunday morning came, I had been planning on celebrating my birthday that day, because my birthday was august 13th, but because august 13th fell on a wednesday, me and my family decided to get together on Sunday to make it easier, so anyways, Sunday as I was waking up and doing my usual praying and thinking in bed, before my crazy italian family decides to flood my day LOL. I kept thinking back to those very first hours that I was born, and kept thinking about those words the doctors told my parents and those words were: she will never live past 10 days!!!!

and for some reason that kept ringing in my ear over and over and than all of a sudden a question popped in my head, I wonder how many days I actually have lived this far??? excuse my language but  I suck at math and so I immediately went to my facebook for the answer and I said: I GOT A VERY IMPORTANT QUESTION FOR ALL THE SMART FACEBOOK PEOPLE. HOW MANY DAYS EQUALS 28 YEARS, I NEED THE ANSWER ASAP.

LOL Of course my amazing facebook friends and family immediately responded and we came up with 10,227 days!!! when I seen that number I just could not help but see a miracle. I was told over and over, you will be dead in 10 days, or you will be dead in 6 months, 1 year, 2 years and so on and so on. But I am here  celebrating my 28th year on this earth, and in doing that I just could not let this day go by without saying, no matter what Love always wins. He always wins, which is why I chose psalms 23:4-6 because I have lived those scripture verses out more than once.

You know when I started getting inspiration from the LORD to write todays blog, after I seen 10 days turned in to 10,227 days, GOD than kept giving me the word freedom and at first I was very confused by that, because I was like, okay GOD I get why you had me ask how many days equals 28 years, but I don’t get why you keep giving me the word freedom?

Than the answer finally came to me. When A lot of people see me, I know what they see, I am not dumb, and I definitely know what they may say: How can she give GOD so much credit? how can she talk about freedom? look at her she suffers every day of her life, and barely can move but yet says she’s grateful to GOD and says she’s free?  how is she free when she is tied down by two diseases every day??

I am here to tell you, if anyone thinks that, which lets be honest with ourselves, I know theres one or two in the bunch who do think that, and thats ok your human, but I am here to tell you, your one hundred percent wrong!!!. O.I (Osteogenesis Imperfecta) and Hydrocephalus do not tie me down,  I have been set free from them. You maybe thinking I am crazy for saying that, because to you being set free means the sickness must be totally  gone, but I am here to tell you I don’t agree. I agree GOD can heal anyone and anything, but freedom doesn’t always mean healing in the natural.

My body may not be healed, but my heart and spirit are, I am not controlled by the diseases, I do not plan my future around these diseases. Even though I walk
through the darkest valley, I will fear no evil, for you are with me your rod and your staff, they comfort me, and well you know the rest of that scripture 🙂 

Jeremiah 29:11 says: For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. It does not say that scripture holds true to only the “healthy” it says: For I know the plans I have for you. GOD has a plan a destiny for each and every one of us, we just have to be willing to have the willpower and stamina to fight for and with the LORD to obtain that destiny. The LORD never said life would be easy, he just said it be worth it.

1 Corinthians 2:9 Says: : “What no eye has seen,what no ear has heard,and what no human mind has conceived” the things God has prepared for those who love him. For years, to this day even all I kept hearing from everyone, was death, you won’t live, you won’t talk, you won’t hear, everything was negative, everywhere me and my parents turned there was negativity being thrown at us, but we chose and I chose to do what the bible says, and it says  your faith might not rest on human wisdom, but on God’s power.

I may not have everything figured out, but one thing I do have figured out is GOD has kept me going for 10,227 days and thats all the answer I need to know that he is alive and still hears our prayers and carries me through every single day.

Years ago I had a major infection that spread thru me like wild fires and to make a long story short, if there ever was a time where I thought I was dying that was it, I truly had nothing left in me to fight and one night during all that I was so ready to go home to the LORD, my mom had laid in my bed that night and had seen the pain I was in and seen how much I was struggling, so that night she had told me it was ok to let go and be with the LORD, and I was very relieved when she said that, because I was ready, I knew where my home was and I was ready to pack my bags go, and so after she went to bed, I barely could open my eyes but I did because I felt something rubbing my head and I assumed it was my mother, I assumed she had gotten back up and was the one touching me and so I went to look up at her, but when I looked up she was not there, no one was there and than the LORD reminded me that someone earlier that day told me she seen an angel at my bedside and that angel was rubbing my head, and so I than started crying because I knew what I was feeling on my head was an angel rubbing me and I assumed the angel was there to take me home and so I started praying to GOD and basically was like ok GOD lets get this party started get this angel to take me home LOL.

The LORD than told me this angel was not there to take me home, but was there to strengthen and encourage me, and he told me to be prepared because my battle was not even close to being over, but that it would be worth it, because the destiny he had planned for me was not fully fulfilled yet and ill be honest when he first told me, he was not there to take me home and that my battle was not even half over, I was pretty depressed LOL, but than when he assured me that what he had in store for me would be worth it and would be beyond my wildest dreams, I gave in and basically just said ok LORD let your will be done.

Saying that and giving up total control and letting the LORD be ruler over me and my destiny was the hardest thing I have ever done, but the best thing. The LORD was right that battle lasted 4 months, and honestly my body never fully recovered from that battle, but the LORD was so right, it was worth the fight to stay and live, because I held out, I got to see my brother and sister get married, I got to see my sister have her daughter, I got to experience life as an auntie to my beautiful niece and I get to write and publish my own book and thats only a small portion of some of the stuff I have gotten to do since that day.

The JOY I felt and the strength I felt when that angel was touching me, there are no words for how amazing that moment was, and I thank the LORD every day for allowing me that intimate moment with him and his angels. I really wanted to post a video of me singing in christ alone, because the words to that song fit perfectly with this blog but in order to have made the video I would of had to wait to post the blog until next week, because we have a full house right now, I have family in town from florida and I just would never be able to get enough quiet time to be able to make the video, but I am begging you all, go listen to that song for me, because the words fit perfectly with what my hearts sharing today and also I promise the next blog I post will have a video of me singing  🙂

I really wanted to avoid you all hearing me sing, but I really feel the LORDS telling me to do that, so that will be my goal next blog singing!!! PLEASE BE PRAYING FOR ME BECAUSE ILL NEED ALL THE PRAYERS I CAN GET FOR THAT ONE LOL.

A fast update before I end the book is almost done, and I really could use any donations your willing to give, because publishing a book is going to cost money, money I do not have LOL so please help support my dream and thanks in advance to anyone who does. remember if you want to give a donation just click on our facebook tab and than donate, or you could send it by clicking this button Donate Button with Credit Cards

 Also please most importantly pray! pray for this book, pray for me, pray for this website, just pray!!!! please pray!!! LOL.

As always thank you for supporting me and THE-BOOK-OF-ROO, please remember to stop by the prayer page and send in your prayer requests if you have any and I promise, me and THE-BOOK-OF-ROO readers will be praying, and as always REMEMBER JESUS LOVES YOU!!!! KEEP ON FIGHTING AND MOST IMPORTANTLY KEEP ON SHINING FOR JESUS ❤ 🙂

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FIND YOU ON MY KNEES

March 24, 2012

2 TIMOTHY 1:7

FOR GOD HAS NOT GIVEN US A SPIRIT OF FEAR, BUT OF POWER AND OF LOVE AND OF A SOUND MIND.

Hi all. I am sorry I have not written anything in so long, but I promise I have a good explanation as to why that is. But before I begin, let me just say: it has been almost a year since I have written anything,, so I may be a little rusty, so if I have any spelling or grammar errors, I do apologize LOL (Laugh out Loud).
OK where do I start? I guess ill start from the beginning.  I don’t know if any of you remember this, but last year, I had mentioned, I had been struggling with stomach issues, for almost four years!!! well those stomach issues had become much worse!!. I think it was a weekend in November, I had planned on going to see my favorite Christian singer and friend, Beckah Shae, in concert, and the morning of the concert, I woke up sick, with what I started calling, one of my, “stomach attacks”.
I didn’t even want to go to the concert, that’s how bad I felt, and I was a little concerned, because for some reason, I felt like this attack was worse than they had been in the past, because usually, if I fought long and hard enough, I could kind of snap myself out of it, but no matter what I did this time, I wasn’t feeling any better.
My mom had convinced me to still go to the concert though, because she knew if I missed Beckah Shae’s concert, I would have regret it. Everyone kept telling me, I was just getting sick from being so excited about seeing Beckah Shae. Now don’t get me wrong, I love, love, love Beckah Shae, but I knew me being sick had nothing to do with her
Honestly, I would get so annoyed, because that’s the excuse people, would always tell me,when I would get sick. They would say: oh you’re not sick, your just excited LOL (Laugh out Loud) , well not only do I know my own body, but I know me mentally and emotionally and I have always been very good at handling stuff mentally and emotionally, and I just knew this was never a mental or emotional issue, this was a physical issue!
Like I said, I did end up going to see Beckah Shae, and I did have a great time, even though I was sick, but it was so funny, because Beckah Shae’s husband took some pictures of us and I had on this Grey shirt, and when I seen these pictures I started laughing, because when I looked at the picture, I am so Grey that I match the color shirt I’m wearing. I will show you all the picture in my next blog LOL (Laugh out Loud).
Beckah Shae sang for half the concert, than another group of people, I think around my age, sang the other half, the group was, I think, called Praise-Apella, they are very talented people, I suggest you all pick up their CD.  Anyways during their half of the concert, Beckah Shae was so sweet, she sat next to me during the rest of the concert, but I was so sick, that it became kind of comical to me LOL (Laugh out Loud)
Because here she is in her cute little concert clothes, and I’m sitting next to her in this sanctuary, filled with all these people and all I kept thinking was, OH SWEET JESUS PLEASE!!!! do not let me puke all over this poor girls clothes and in front of all these people LOL (Laugh out Loud)
Wait the story gets better LOL (Laugh out Loud). At one point I finally whisper to her and my mom, I have to get out of here, and so my mom says: OK, and she goes to take me out, and of course once again, Beckah Shae, being the sweetheart she is, would not just let us go out there to deal with everything on our own.
She grabbed my giant wheelchair with oxygen and all and started pushing me out of the room her self and even though I was sick. I couldn’t help but laugh for a second, because as she was pushing me out, you slowly seen the whole sanctuary, especially the kids, slowly turning their heads, looking at us, like hey! what the heck are those crazy people doing with Beckah Shae! LOL (Laugh out Loud).
Even though I had been sick, and that night did not go exactly as planned, I was still very thankful and blessed, to have had that night and once again, I have to thank Beckah and her husband for being so sweet and making me and my parents feel so welcomed. I don’t mean any disrespect to any other Christian artist out there, but I truly do not think, they would have done as much as Beckah Shae did, I have met a lot of people over the years and none of them have been as kind as Beckah and her husband.
I mean really, what big time singer do you know, Christian or not, that would help walk a sick kid out of the room and try to care for them? I cannot speak for any of you, but I can speak for myself, and like I said: I have met a lot of people over the years and none of them have gone out of their way like she has.
Honestly after that night, excuse my language, but I went through HELL I kept getting sicker and sicker and sicker and still no Doctor could figure out why.  Me and my poor mother, both, spent close to three months sleeping in our living room.  I could not sleep in my own room, or bed, because any time I feel nauseated, I must have someone standing by my side to watch me, because if I go to throw up and am alone, I will CHOKE TO DEATH!!!, because of the fact that I cannot sit up. So whenever I’m nauseated mom stays up all night. She is the only one that fully knows how, and is fully comfortable handling me.
During those times I will admit, it can get a little scary for me, I am extra careful, and I know my moms the only one that can fully handle it all, so I also am the most comfortable when she’s around, and pretty much beg her to stay by my side during those times. So because of that, me and mom made the living room in to our bedroom for two or three months. Two weeks before Christmas, I started to violently throw up bile. I never even knew it was physically possible for someone as small as me to throw up as much as I did, it started to get pretty scary!!
From the end of November, to the beginning of February, I had barely slept, nor had I ate anything. So than of course, Because I had not eaten, and yet was throwing up, I instantly was becoming severely dehydrated.  So my parents kept having to rush me to the Emergency room. The Emergency room, would of course admit me, and would run, test after test after test, every time I would go, but nothing was ever showing up on those tests, actually, some of the tests were even coming out better than they had in years.
Of course because all my tests were coming out normal, after a while some Doctors started accusing me of being depressed, they said: the O.I (Osteogenesis Imperfecta) was probably starting to get to me mentally, because the disease is such an awful disease, they had continued to say: basically, that everyone with O.I (Osteogenesis Imperfecta) goes through depression, and that was probably, what was happening to me, and they suggested that I should think about seeing a psychiatrist. Basically in their opinion, I was mentally making myself physically sick LOL (Laugh out Loud).
Every time I heard that crap and that’s exactly what it was, “crap”, was such a joke to me and very offensive, because that is such a false statement, that most people with O.I (Osteogenesis Imperfecta) are depressed.  I know and have talked to many people with this disease, and they are the most positive, strong-willed, inspirational, spiritual, outgoing, happy and most joyful people you will ever meet. Most of them have the same type of personality and frame of mind that I have.
I was very blessed, because even though, I had met a few Doctors, that had accused me of being depressed.  I had an amazing primary Doctor that not only listened, cared, and believed in me, but he also trusted mine and my moms word, and opinions. No matter how insane things had started to get, he never gave up on me, he was always fighting for me.  I will always be thankful to him for everything he’s done over the years, I am so thankful GOD brought him in to my life, because I really and truly believe I would not have the quality of life that I have if it were not for him.
This sadly, was the first Christmas (ever) that I was in the hospital.  Christmas eve night, I felt one of my, as I call it, “stomach attacks” coming on, and I told my mom, Oh no, I think I’m going to be sick for Mira’s (my niece) first Christmas. Mira is my only niece and my parents only grand kid, and so to be sick on her first Christmas, was a hard one for me, because I felt like, I ruined her first Christmas, and it just made things even worse knowing, I had never been sick on Christmas before, never ever!!!, so it was kind of like awe man of all Christmases why this one?.
I was admitted in to the hospital Christmas night.  Just in the past three months, this was my third time being admitted for the same exact thing, it started getting depressing when I realized, I not only knew the nurses well that were on the main floor, but I now, was also getting to know, the Emergency Room nurses, just as well, that became a little depressing LOL (Laugh out Loud).
So after my third time of being admitted and released, with no new, news as to why this kept happening. My body had pretty much had it at this point, and I had no clue what to do, all I kept thinking was, GOD I cannot live the rest of my life-like this, because you also have to remember, every time I went through this, I was also breaking every bone in my body, from throwing up, and the worse part was, because I was throwing up and could not hold anything down, I could not even get my pain medicine down, so I also was dealing with all my broken bone pain.
Two weeks after Christmas, I was sick again, and this time, it was worse than ever before, I just would not stop throwing up!! in just a matter of six hours, I probably threw up more than thirteen times! for my little body that’s a lot.
So my Doctor, this time, I think realized, not only was this getting worse, but I think he could also tell, there was not much more my body could take, and we had run out of tests to run, so he said: OK I think its time we talk about doing an Exploratory Operation, but the thing was, even though, me, him and my mom, all agreed it needed to be done, getting a G.I Doctor or a Surgeon to agree to it, was another story!!
Because you see, they don’t even like to do Exploratory Operations on healthy people. So to do one on someone like me, they like to at least have something show on x-rays or C.T Scans, so they have something to go on, because usually when nothing shows on these special C.T Scans, it means the odds of them finding something in surgery, are slim to none. So most of the Doctors, were not willing to take the risk of surgery.
Surgery for me is a huge risk normally, because of my many health issues, and that type of surgery was even a higher risk, because where they had to go in to my stomach, is right where the tubing is to my shunt, and if they pushed to deep, they could have cut right through the shunt tubing, and there was also a huge risk of infection and so a lot of the Doctors just felt, those were all way to many risks.
So when I was admitted this last time, my Doctor said to me, if we and really, if you (meaning me) wanted an Exploratory Operation done, than we are all going to have to work hard to talk them in to it, and boy was he right!!! LOL (Laugh out Loud). That week, I seen more than four different G.I Doctors, and basically, in their own nice Doctor ways, they said: they were not touching me with a ten foot pole LOL (Laugh out Loud).
I spent, that whole beginning of the week, trying to talk these Doctors in to cutting me open, and after the third day of every Doctor turning me down, things started looking pretty hopeless again, and I remember my Doctor came in on a Wednesday night, and I remembered thinking, boy he looks just as discouraged as I feel. LOL (Laugh out Loud) and he tells us, he has one more Doctor he wants us to talk to, but that this Doctor was a surgeon, we all knew, we needed this Doctor to say yes.
After he left, a nurse who has been taking care of me, since I was like ten years old, she is more like a friend than a nurse to me. She came in to see me, because she said she seen my Doctor leave my room, so she wanted an update on what was going on, so me and my mom told her what he said, and I remember her exact words, she looked at both me and my mom and said: Oh geez, ya know, I have a feeling your going to leave this Hospital, with no new answers and your going to end up going through this all over again.
After she left that night, I started praying, and just started crying out to GOD and said: I will not accept what she just said, you have got to make a way LORD, I said: I could not live the rest of my life-like this, that I was exhausted, and that something needed to break, enough was enough!!!!!!, that night I came across this song, find you on my knees, and when I heard the words to this song, I started crying all over again, because this song was exactly how I felt.
There is a verse in the song that says: WHEN MY HOPE IS GONE, WHEN THE FEAR IS STRONG, WHEN THE PAIN IS REAL, WHEN ITS HARD TO HEAL, WHEN MY FAITH IS SHAKEN AND MY HEART IS BROKEN AND MY JOY IS STOLEN, GOD I KNOW THAT, YOU LIFT ME UP, YOU NEVER LEAVE ME THIRSTY. FIND YOU IN THE PLACE I’M IN, FIND YOU WHEN I’M AT MY END, FIND YOU WHEN THERE”S NOTHING LEFT OF ME TO OFFER YOU EXCEPT FOR BROKENNESS, YOU LIFT ME UP, YOU NEVER LEAVE ME THIRSTY, WHEN I AM WEAK, WHEN I AM LOST AND SEARCHING, I FIND YOU AT MY KNEES!
That night, of me crying out to GOD, he guided me to this CD, (Where I find you, by Kari Jobe) and it had that song, find you on my knees, that entire album ministered to me so much. After I heard that song, I still had no clue what would happen, but for the first time, in a long time, I had PEACE,,I had that kind of PEACE I always talk about, the PEACE that passeth all understanding and I knew whatever happened, it be OK, because GOD had me in the palm of his hand.
That next day, that surgeon that I mentioned earlier, that one, that would be our last hope, he came in and he was very nice, but at the same time he was partly just as against the surgery as the rest of the Doctors I had seen, but there was one difference with him, he was like my primary Doctor and actually heard, and respected what I was saying and feeling.
He said to me, listen, I know I can do this, but I don’t know why you want to go through all this for nothing, and he went on to say, what the rest of the Doctors had said, that because nothing showed on my tests, it was very unlikely they would find something, and this surgery had a long recovery and was risky for someone like me. So I said to him, well listen, if you were me, and have gone through everything I’ve gone through and if you knew this was your last option, what would you do?
Would you have the surgery if you were in my shoes? and he said YES, and I said OK, than let’s do it. That next morning I went in to surgery, and I never was so excited for surgery LOL (Laugh out Loud) seriously I had such PEACE through the entire thing, the only time I cried a little, was when my mom left the surgery room. They always let my mom walk in to the surgery room with me, because they have her lay me on the Operating table, because their even scared to pick me up LOL (Laugh out Loud)
The reason I chose 2 Timothy 1:7 as my main scripture for this blog, is because that’s the scripture, GOD kept giving me any time I felt fear starting to take over. The part I hate most about surgery, is that first five minutes, when they start putting you out, you feel so weird, and that always scares me, so that whole time, I just kept saying, the LORD did not give me a spirit of fear, but of power, love and of a SOUND MIND!!
A surgery that was supposed to take a little over an hour, took almost THREE HOURS!! because guess why????? LOL (Laugh out Loud). They found something!!!! because of all the past surgeries I’ve had on my stomach, and because of the fluid in my head draining in to my stomach, and me having the tubing to the shunt there, I had a bunch, and I mean a bunch!!! of Scar Tissue and Adhesion’s building up inside of my stomach, and it was literally, choking all my organs and my intestines, and the reason nothing showed on any of my tests, is because Scar Tissue and Adhesion’s, are the one thing, that will not show up on any tests.
It also though, usually never causes trouble for people, but it was causing trouble for me, because it was taking over the little room I had left in side of me, because like I told you all before, there is hardly no room for my organs as it is, and is like trying to fit ten pounds of flour in a five-pound bag. Well with the Scar Tissue and Adhesion’s there, it was like trying to fit 15 pounds of flour in a five-pound bag LOL (Laugh out Loud)
When that Surgeon came out of the Operating room, my entire family said, it looked like he just had come out of a war LOL (Laugh out Loud). Sadly things still ended up not being easy for me, because I ended up getting an infection right after surgery and had 103 to 104 fever and I ended up in the ICU for five or six days. When I came out of Surgery I was as sick as a dog obviously, but it was weird, because I remember thinking, I didn’t even need to talk to the Doctor to see if they did anything, I already knew they had.
Even though I felt like crap, I also felt amazing, I knew the second I came out, there was something different about my stomach, but it was a good thing.  I remember the first time I ate without feeling sick, it was amazing, I even posted it on my Facebook that day, I posted, today was the first time in three years I ate without getting sick!! I almost started crying because I was so happy, all I kept doing is thanking GOD.
The Doctors have warned me, that in their opinion, medically, they know that nauseated feeling will come back, because, number one they were not able to get all the Scar Tissue and Adhesions and secondly, the Scar Tissue and Adhesions, that they did get, will eventually grow back, in their opinions, and I will be honest, I have had a few stomach-ache’s every now and then already, since surgery, but all in all, im still nowhere near where I was, and even though the Doctors are saying, it’s all going to come back.
I do not have to except that, my real Physician, is my LORD JESUS CHRIST, and he says: no weapon formed against me shall prosper and that im HEALED IN HIS NAME So I am asking all of you, my, THE-BOOK-OF-ROO readers, to please keep me in prayer and stand in faith with me, and believe with me that, im covered by the blood, and nothing can nor will it touch me.
I am so thankful to rainbows babies and children’s hospital, and my primary Doctor and the Surgeon, I don’t know if they will ever see this, but if they do, Thank you so much, for taking that risk, that no one else was willing to take, and for believing in me!!!!!! if it were not for my Doctor never giving up on me, and that surgeon for willing to do surgery, I may not have even have been here today, because eventually what would have probably happened, is my organs, or at least one of them, would have probably started failing on me, or my appendix would have burst, because my appendix was already in really bad shape.
The LORD gave me this scripture today. psalm 27:1-4 The LORD is my light and my salvation whom shall I fear? The LORD is the stronghold of my life of whom shall I be afraid? When the wicked advance against me to devour me, it is my enemies and my foes who will stumble and fall. Though an army besiege me, my heart will not fear; though war break out against me, even then I will be confident. One thing I ask from the LORD, this only do I seek: that I may dwell in the house of the LORD all the days of my life, to gaze on the beauty of the LORD and to seek him in his temple.
Like I always say, life’s a battle, it’s a war. The LORD never said life would be easy, why do you think the bible talks about war all the time, and describes the bible itself, as being a sword and our faith as being a shield and our salvation as being a breast-plate, because he knew how hard life would be, he knew we would be at war. but the prize we get in the end is so so worth it all.
Joshua 1:5 says: No one will be able to stand against you all the days of your life.  As I was with Moses, so I will be with you; I will never leave you nor forsake you.  The LORD just gave me this scripture now.  This scripture tells us, no matter the struggles, no matter the trials, no matter the pain, he is there!!!! I may have went through HELL but in the end I arrived in heaven, and GOD has turned my sorrow in to JOY BABY, AND I AM GOLD!!!!!!!!!!!
Remember we are covered by the blood of JESUS!!!!!!!!!! and nothing, nothing, can touch the blood. I never fully understood how powerful that is, up until this past year.  Because GOD answered my prayer and gave me an answer on my stomach issues, has life been perfect? heck no, the day I got out of ICU my grandfather was being rushed in to ICU, and while I was trying to recover he ended up passing away!!!
So like I said, life is not easy, the day I came home from the hospital, I didn’t even get to enjoy it, because I ended up having to go to his funeral, and technically I was supposed to still be in the hospital for another four or five days, but I explained my situation and because I live not even five minutes from the hospital, they let me come home.
So like I said and been saying, life is not easy, I know, but all the pain, all the struggles, the heartache, its all worth it. Because each and every one of us have a destiny to fulfill. Colossians 3:15 says: And let the peace that comes from Christ rule in your hearts. For as members of one body you are called to live in peace. And always be thankful.
We are his Children, we need to get back to speaking LIFE over our selves. I heard this teaching the other day, this guy said: we get to caught up in to feelings and he’s right, we need to stop concentrating on how we feel and concentrate on what we know. Like I know im a child of GODS, and I know im in the palm of his hand, and I know im worth more than GOLD, because he has made me.
I know this website is part of my calling and my destiny that GOD has for me, so no matter how weak, and tired and even sick I feel, I push myself to write and I will continue to, because I know this is part of what GOD wants of me, and I only desire what he desires for me.
OK this blogs way to long so whatever I’ve left out, ill have to put in next week I guess LOL (Laugh out Loud). I do have a few short announcements before I end though.  Number one, THE-BOOK-OF-ROO, is back in action, so please start checking the site often, there will be lots of cool and exciting things to come, Number two, THE-BOOK-OF-ROO has its own magnet, it’s actually that picture above, I’m giving them out to anyone that wants them. my goal with these is to pass them out all over, so everyone will know about THE-BOOK-OF-ROO, so if anyone wants magnets to pass out, please contact me and ill mail them to you, no matter where your from. For now I’m only doing magnets, but eventually I would like to do other things, like maybe even a shirt 🙂 Also THE-BOOK-OF-ROO is going to continue making its own youtube video’s.
I hope you all enjoy the past video’s I’ve made. Number three, THE-BOOK-OF-ROO, since I love writing about Christian music so much, I may also start a page where I talk about Christian music and may even try interviewing some Christian artists. So like I said, lots of new and exciting things to come.
WELL I GUESS THAT’S IT FOR TODAY.  I AM SO SORRY THIS BLOG IS SO LONG, BUT I HAD NOT WROTE ANYTHING SINCE JULY, SO I HAD LOTS TO CATCH YOU UP ON, BUT I PROMISE, ILL NEVER, EVER MAKE YOU ALL READ THIS LONG OF A BLOG EVER AGAIN.   PLEASE REMEMBER IF YOU HAVE ANY PRAYER REQUEST AT ALL, PLEASE DO NOT BE SHY, CLICK ON OUR PRAYER REQUEST PAGE, AND TELL US WHAT YOU NEED PRAYER FOR AND I ALONG WITH ALL THE-BOOK-OF-ROO READERS WILL BE PRAYING. WELL THAT’S IT FOR THIS WEEK, REMEMBER I AND MOST IMPORTANTLY JESUS LOVE YOU. GOD BLESS 🙂

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CELEBRATION OF LIFE!!! (A THANKFUL HEART)

May 9, 2011

 PSALMS 107:1

GIVE THANKS TO THE LORD, FOR HE IS GOOD; HIS LOVE ENDURES FOREVER.

Hi all. I am so sorry I have not wrote anything since easter 😦 I do have some good excuses though lol (laugh out loud).  I really wanted to write a blog about Wishbone day! (ill explain what Wishbone day is in a second).  Sadly Wishbone day was on Friday May 6th, so I did not get to writing the blog in time for it 😦 so for now ill still just give a brief explanation, about what Wishbone day is.

You see, Wishbone day, is a day where people with OSTEOGENESIS IMPERFECTA (brittle bone disease) the disease I was born with and battle every day.  Come together from all over the world!! and wear yellow to show awareness for the disease.

More importantly, Wishbone day, is a day to celebrate our accomplishments and to celebrate Life, and it’s a day to show people that we really can do all things through Christ who gives us strength and that yes, with GOD all things really are possible.

 For those of you who may be  new readers and may not know much about this disease, let me briefly tell you a little bit about it.  It is a brittle bone disease, The bones do not grow right and it is a disease where people can break bones daily!!

There are different types or severities of the disease.  The type I have is one of the most severe types.  I break my bones every hour!! people ask me all the time if when I break my bones, is it as painful as it would be for any average “Healthy” person? my answer to that question is, yes!!!!!! the pain you all feel when you break a bone, is the exact same as the pain I or anyone with Osteogenesis Imperfecta feels, the difference is, what it takes to actually break the bones and then the way they heal.

 For instance, you all may break your bones by falling off a bike, or getting in to a car accident, where I on the other hand would break my bones by coughing or just taking a deep breath.  Thats Osteogenesis Imperfecta in a nutshell lol (laugh out loud).

 The reason I did not get to doing this “Wishbone day blog” is because,  First I was sick,  and than my computer started crashing on me, so I could not get online much.

The Video above is my own creation!!! it took me four days! to do this video,  Because of my computer being so messed up lol (laugh out loud).  But hey at least I got it done, right? right lol.

My first intentions for doing this video, was to show my support for OSTEOGENESIS IMPERFECTA and Wishbone day (awareness day).

Sadly my computer did not cooperate with me and Wishbone day came and went lol (laugh out loud), and at first I was kind of disapointed and I was going to scratch the whole project. than I went online and seen all the amazing things my friends and family did to support Wishbone day,OSTEOGENESIS IMPERFECTA and me.

I also seen all the stuff other families, from all over the world!! were doing, and I was very touched and in that moment the LORD spoke to me and told me to continue creating this video and guided me into a new direction and path.

Other than mentioning Wishbone day, I really did not know what to write  about until just now that is.  As I was reading the words that I was writing and thinking in my mind about what I went through trying to make this video on my” junk” of a laptop lol (laugh out loud) I felt the LORD speaking to me and telling me to write on PATIENTS!!!

My computer kept freezing every twenty to thirty minutes, while I was making this “Wishbone day” video, which means, I had to keep restarting  everything every twenty to thirty minutes.  I was getting so annoyed at times that ill admit, I definitely had some ungodly thoughts going on in my head about this laptop and video lol (laugh out loud)

And I so wanted to just give up on this thing and forget that it ever existed and I soooo wished, I had never thought of making it to begin with.  But than as I was looking at all the pictures of people with Osteogenesis Imperfecta and hearing all their stories about all the things they have overcome in life

And than thinking about all i’ve overcome.  I thought to myself, heck no, I have never given up on anything before, so something as small as this for sure is not going to scare me away or break me.

I kept at that video till it was perfect!! I could have chose to give up, that would have been the easy thing, right? no we cannot allow anything in life to scare us away, we keep fighting for our goals, we keep pressing forward.

If you do research on all the people with Osteogenesis Imperfecta, you will see how many things these people (including me) fight for, on a daily basis.  If there is something you want in life, FIGHT for it, I hate when I hear Christians say: well I was trying for this, or that, but it just didn’t happen, so I guess that means GOD has other plans.

Well yes that could be true for some people and some situations, but there are also times where I think, we are stopping our selves from getting what we want in life, because we can be so impatient.   Some Christians and people in general just want everything NOW!.

And yes there are times GOD does make things instantly happen, but there are other times where we need to fight for things, fight for  L.I.F.E. Why do you think the bible says in EPHESIANS 6:10-18.

Finally, let the LORD make you strong. Depend on his mighty power.  Put on all of GOD’S Armor.  Then you can stand firm against the devil’s evil plans.  Our fight is not against the rulers, the authorities and the powers of this dark world.  It is against the spiritual forces of evil in the heavenly world.

So put on all of GODS armor.  Evil days will come.  But you will be able to stand up to anything.  And after you have done everything you can, you will still be strong.  So stand firm.  Put the belt of truth around your waist.

Put the armor of Godliness on your chest.  Wear on your feet what will prepare you to tell the good news of peace.  Also, pick up the shield of faith.  With it you can put out all of the flaming arrows of the evil one.

Put on the helmet of salvation.  And tale the sword of the holy spirit.  The sword is God’s word.  At all times, pray by the power of the spirit.  Pray all kinds of prayers.  Be watchful, so that you can pray.  Always keep on praying for all of God’s people.

So see don’t you get it? there are times the enemy comes in to attack, kill and destroy, (even in the small things) but we cannot back down.  We need to FIGHT!!

In a part of the video I made, you will see it says: DON’T EVER GIVE UP! if you just Abide and stand, you’re greatest victory is at hand.  I got that saying from Beckah Shae.  I think it’s awesome.  We all just need to keep doing what I did with that video and instead of just giving up right away, like we do.  We need to pray and have GOD help and lead us through.  Just like he lead me on how to make this video work still.

I was talking to someone the other day that was a little discouraged about something and she kept saying: I just don’t think I could do this anymore.  I told her the same thing I am about to tell you, the word cant is not in my dictionary, I hate that word and I hate hearing people say it.

GOD gave us free will, which means everything in life’s a choice.  Yes some things may be harder to do and you may have to give every ounce of strength thats in you to do it, but you can! cause again we can do all things through christ who gives us strength.  So keep fighting for L.I.F.E.

Before I end this weeks blog, I would like to give a special thank you to my friend Laura Clemente and all the people from all three of the LA BARBERIA SALONS and all the people from LABARBERIA  INSTITUTE OF HAIR (IN CLEVELAND OHIO).  Thank you all so much for supporting me in making Wishbone day heard

And also thanks for letting me share a little bit of my heart with you all.  Laura you have known me for probably close to 20 years now and you have been an amazing friend. Thanks for everything you have always done for me 🙂

Also happy belated Mothers day to all the moms out there.  Mom you have been amazing and have given your entire life to care for me, I will always be grateful for having you in my life, your the best!

Enjoy Life all be grateful for everything GOD has given us.  That is what Wishbone days about Celebrating LIFE, SO COME ON ALL LETS CELEBRATE, BY PRAISING OUR GOD FOR GIVING US LIFE AND LIFE MORE ABUNDANTLY.  WELL THATS ALL GOD GAVE ME FOR TODAY.  SEE YOU NEXT WEEK ALL. GOD BLESS AND REMEMBER I LOVE YOU AND MORE IMPORTANTLY JESUS LOVES YOU 🙂

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BLESSED!!! (DEDICATED TO MY ENTIRE FAMILY)

April 6, 2011

NUMBERS 6:24-26

THE LORD BLESS YOU AND KEEP YOU;

THE LORD MAKE HIS FACE SHINE ON YOU AND BE GRACIOUS TO YOU;

THE LORD TURN HIS FACE TOWARD YOU AND GIVE YOU PEACE

Hi all.  Well this week has been one crazy week!!! I am sorry I didn’t do a blog this week, its been very hectic here.  I have lots of announcements, some good some bad lol.  Lets see where do I begin? Well to start with, the guy from Gospel innovation kept his promise!!! he made me 3 different banners/logo’s to pick from, but I am in love with all 3 and am having a awfully hard time deciding which one I want to become the official THE-BOOK-OF-ROO banner/logo, so I am asking all my THE-BOOK-OF-ROO people to help me out and vote for which banner/logo you like best, to vote just go to this website  http://www.pollsb.com/polls/p2182308-poll_the_book_of_roo_decided_upgrade_the

The second announcement is, I became an aunt for the first time! a baby girl!! she was born this past Friday April 1St she is so cute and my first name is her middle name isn’t that cute? 🙂 she has inspired me to make the video above that is of my family, please watch this video you will all love it 🙂

The third thing is more a prayer request than an announcement, but after the baby was born, me and my mom planned on spending most of the week at my sisters to get to know the new baby, but sadly on our way to the hospital the day after she was born, we all heard this big POP  and later we found out that Popping sound came from our van!! I do not know all the technical details, but bottom line is after 13 years our van finally gave out on us 😦 so I am asking, no I am begging, please all be praying for us, that some way or another GOD works some kind of miracle and we our able to get a new van!!!

You know these past few days the LORD has really been teaching me how to enjoy the many blessings HE gives us freely every day. When that van broke down, sure me, mom and dad could of got angry and let that ruin the babies home coming and we could have let that take our JOY away, but we didn’t, because we knew what was important, we knew what mattered and that was that my sister and her baby were healthy and on their way home!!!  I may not be rich in material things but I am rich, I am blessed with things that are much more important.

It took a lot of strength and courage for my sister and her husband to go through with having a baby, because for a very long time we were not sure how safe it was for her to have one, because of all my medical issues.  You all have heard me say before that the past 3 years have been hard and I have been sick  and have been through a lot and been in and out of the hospital, but the one good thing that came out of all that, was the fact that since I was in there so much, my sister had asked me if I wouldn’t mind getting a genetic DR to come look at me, of course I said no problem, my sister would do anything for me so its the least I could have done for her.

So the Doctor came and did some blood work, and through all that we found out which type of Osteogenisis Imperfecta I had and also found out that the type I had was not a hereditary thing, it was not something that could get passed down to any future baby!!! which was a huge relief to my whole family including me.

I am very thankful for my life and have no complaints but I do know how hard it is to live with Osteogenisis Imperfecta, not just on the person with the disease, but also for the entire family.

Having a disease of any kind really does transform the entire family.  All I can say is you have the choice as to how it transforms you? Me and my family choose to have it make us stronger!!

Like you all have heard before I was not supposed to live past 10 days!!! 10 days!!! there were so many things I was told I would not live through.  So many times I was told I would not have the chance to experience LIFE.  I never in a million years thought I would out live family members and friends that I loved.

Never did I think id have a chance to experience the things in life that I have been blessed to experience.  I remember as a kid praying and saying OK GOD just need to make it a few more years to see my brother get married and than id say OK GOD a few more years to see my sister graduate, and so on and so on.  I have always been at peace and have known that my life is in GODS hands and whatever happens, happens.  What if GOD didn’t answer my prayers? what if he did take me home before I had a chance to see my niece, or my brother and sister get married? would I have been mad? would I have felt like GOD was a failure? Heck no!!! we can not control time, GOD is in control of my life, always has and always will.

My friend who I had asked you all to pray for a few weeks ago, the lady who was in the I.C.U, well she is home and doing fantastic.  She is doing so well that she actually had told my mom to tell me to read Psalms 91. Does anyone know Psalms 91?

Psalms 91 says: Whoever dwells in the shelter of the Most High will rest in the shadow of the Almighty.  I will say of the LORD, “He is my refuge and my fortress, my God, in whom I trust. ” Surely he will save you from the fowler’s snare and from the deadly pestilence.  He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart.  You will not fear the terror of night, nor the arrow that flies by day, nor the pestilence that stalks in the darkness, nor the plague that destroys at midday.

A thousand may fall at your side, ten thousand at your right hand, but it will not come near you.  You will only observe with your eyes and see the punishment of the wicked.  If you say, “The LORD is my refuge,” and you make the Most High your dwelling, no harm will overtake you, no disaster will come near your tent.  For he will command his angels concerning you to guard you in all your ways;

they will lift you up in their hands, so that you will not strike your foot against a stone.  You will tread on the lion and the cobra; you will trample the great lion and the serpent. “Because he loves me,” says the LORD, “I will rescue him; I will protect him, for he acknowledges my name.  He will call on me, and I will answer him; I will be with him in trouble, I will deliver him and honor him.  With long life I will satisfy him and show him my salvation.

When I read that I was reminded of when I was younger and how any time things would get really bad, or scary, my parents and my one friend would read that scripture to me.  People ask me all the time why I think I have lived as long as I have? My answer is right there in Psalms 91, read it carefully and you will understand, it says: whoever dwells in the most high, which means whoever dwells in him will be under the LORDS covering.

So again we have a choice? we can dwell on the good or dwell on the bad? But if we dwell on the good, if we dwell on L.I.F.E the LORDS hand will be on us, no disease, no harm, nothing can touch us and we will have long LIFE in JESUS!!!

I am going to enjoy every minute I have and not waste time dwelling on stupid negative unimportant things.  What is important is L.I.F.E and what you do with it, you can be a blessing, a blessing to L.I.F.E, a blessing to the world.

L.I.F.E (LOVE IN FULL EFFECT) lets make a difference in this world, lets stop living in fear and get out our armor and sword and fight for L.I.F.E!!!

I am blessed because I have a family that loves me

I am blessed because I have a roof over my head and people who care for me

I am blessed because I am experiencing what L.I.F.E is

I am blessed because I have an amazing team of doctors who care for me

I am blessed because CHRIST carried my cross and died for my sins

I am blessed because I have the LOVE OF CHRIST IN ME

THAT’S IT FOR TODAY ENJOY ALL. GOD BLESS

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I’m Blessed. Are you? (Update on Me)

November 20, 2010

I’m sorry I haven’t been writing my tip of the day the past few days, but I have a good excuse lol. As most of you already know the past two years or so have been a struggle. I have had many medical issues that my doctors cannot figure out 😦 well it happened again. This past Wednesday I woke up at around 8:00Am to post on my blog page, and while I was writing everything up I felt fine, I felt like my old self, after I was done writing on my blog page I said well let me take a nap, so I took a nap, and I did not wake up until 1:00pm. When I woke up I instantly knew I was getting sick, my heart was pounding and I just felt very light headed, I knew something bad was coming, so I immediately went to my facebook page and asked a few people that I knew to please keep me in prayer, after I wrote those 4 or 5 words on facebook I just got so sick I couldn’t move or speak. I got very very sick to my stomach, could not hold anything down not even my meds. So to make a long story short, by id say 11:00Am the following day I was admitted in to the hospital for a little over 24 hours, they pumped me up with my meds, and fluids and I finally started to feel a little more like myself again, but the sad thing is once again they still do not know why I got so sick, they ran all kinds of cat scans, and blood work but it all came back NORMAL!!! which I know I know is a good thing but yet a little bit of a frustrating thing because that means this has a chance of happening again, after I came home I was very very happy to be home but a little sad because I thought oh great once again they found nothing, and of course I started to in a way throw a small pity party for myself, and than of course GOD did what he always does and smacked me upside the head and said WAKE UP SISTER!!! LOL. When I got home I went to my emails and seen two letters from two different people that I’m, I guess you would say pen pals with on line, one lady was from the O.I website which is a website that’s directed for people with my disease to go to so you can learn about O.I or meet others with the disease, and the other website is just a facebook page for disabled/sick people to go to, to talk or vent, so I opened the first letter and it was from the disabled/sick people page and she was telling me that her daughter had passed away and lost the battle to melanoma I do not know much about these people and do not know much about Melanoma, the only thing the family would ever share on line was that their daughter had Melanoma and they needed as much prayer from others as they could get, even though I did not know this young girl I still felt very bad, and felt like just from that one email GOD already sent me back to reality. I than opened up the second email, and sadly it was pretty much the same story except this one even touched me more, and really hit home, because this was a baby only a few months old if that. The mother had started to contact me before she even gave birth to the baby, she had contacted me because she seen my name on the O.I site and wanted to get a better understanding about O.I, so I had started to answer any questions she had, and started to become friends with her on line. This woman was so excited to be a mother she did not care that she was going to have to take care of a sick baby, she just wanted any and all info she could on caring for one. The baby was born in August not even 5 days after my birthday, and she was born with type2 O.I which is I think the most severe type and very similar to my type. The doctors do not know my exact type because I’m as bad as type 2 people but I have lived much longer than type 2 O.I’ERS so we don’t know. When my friends baby was born the doctors told her and her family the same thing they told mine, that this baby was not surviving past 2 weeks and after about 2 weeks of her being on a breathing machine and no change the Doctors told the family they had to make a decision of turning off the machines. This families story was much like mine except I lived. So after I got home and saw those two emails and really started thinking and praying, I said the heck with it all LORD, so they didn’t find out why I get so sick, all my tests still came out fine!!! which is a huge huge blessing. So I throw up once in awhile, who cares I can deal with it. These two woman buried their daughters before they ever even had a chance at life!!! there cant be any worse heart breaking situation than that. So I will not choose to sit around feeling sorry for myself saying why cant I do this or why cant I do that, or why does this have to happen, no no no no no no. I will not let stupid negative waste of time things take control over me. I will choose to say I am blessed. What I would like to say to all of you who read this is no matter what you may go through, no matter how bad your circumstances are, just know that you will get through it as long as you choose to have the LORD on your side. I’m determined not to let the bad situations in my life get to me. That determination that I have you can have to if you just put your full trust in the LORD and apply his word to your every day life, if you do that than you will be able to reach the goals that he has for your life, and you will be able to see that all things are possible!!!! whatever tomorrow brings for me I am happy knowing that I will wake up and be home in my house with my family or I will be in heaven with the LORD, because I know that he is there for me, HE IS HOLDING US ALL IN THE PALM OF HIS HAND REMEMBER THAT any time you feel alone in life know that he is there. In the end of today’s blog I hope I leave you all with the understanding of how important life!!! is, it is up to you on how you want to live it. I choose to be happy I know I live a very happy, and fulfilled life. I am blessed, I AM BLESSED I AM BLESSED TO HAVE THE PARENTS I HAVE, I AM BLESSED TO HAVE THE FAMILY I HAVE. I AM BLESSED TO HAVE THE DOCTORS AND NURSES THAT CARE FOR MY MEDICAL NEEDS, I AM BLESSED TO HAVE EXPERIENCED THE MANY WONDERFUL AND AMAZING THINGS THAT I HAVE EXPERIENCED, AND MOST OF ALL I AM BLESSED TO WAKE UP IN THE MORNING AND BELIEVE. If there’s anything I could share with you it is to be grateful for the life that GOD has given you, no matter what life may bring to you all YOU NEED TO KNOW THAT YOU ARE BLESSED. Mostly I do thank GOD that he chose me to be who I am today. I have never blamed GOD or anyone else for having this disease. I have only thanked GOD for giving me the chance at LIFE, and giving me the opportunity to find out what life is really about.     I do consider myself blessed

AGAIN PLEASE EXCUSE MY SPELLING AND GRAMMAR


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