PROVERBS 16:16
HOW MUCH BETTER TO GET WISDOM THAN GOLD, TO GET INSIGHT RATHER THAN SILVER!
Hi all. It has been a world wind of a few months, I’ll be honest it has not been easy. My health is declining more and more and honestly it’s getting a little overwhelming and even a little scary.
As you know from my last Vlog/blog, my Doctors were suspecting I had developed something called abdominal compartment syndrome, if you do not know what that is either watch/read my past vlogs/blogs or google it LOL. All I’ll say is it can be a very serious and scary condition, my Doctors were 99.9% sure that’s what I had but than when they brought a plastic surgeon into my case he wasn’t as convinced as they were so he suggested I go into the hospital (be admitted) for a few days to get what is called an intra abdominal pressure monitoring test, I explain what that is in more detail in the Vlog so if you want a good explanation go watch the Vlog LOL.
Anyways after having that test it kind of left us with mixed signals to be honest, yes my levels were on the higher side, but not quite high enough to say I had abdominal compartment syndrome so instead they diagnosed me with having abdominal hypertension, what is that exactly? Well I explain in detail what it is in my Vlog, but basically it’s not quite the same as abdominal compartment syndrome but it’s creeping towards that, it’s kind of what you get right before that happens.
Now the tricky thing is, for some people it never goes into compartment syndrome, it just stays in this abdominal hypertension stage forever, but than others it does go into compartment syndrome so right now it’s a waiting game.
The other tricky thing is, there are not many people that battle this issue for the reason I am battling it. I developed this because the scoliosis that I battle is extremely severe and it’s getting ten times worse as I’m aging, I mean it’s moving at a rapid pace if you ask me. The thing is though that most people do not develop these abdominal issues from scoliosis, they mostly develop it from bad car accidents and most people that do develop it from battling scoliosis usually do not battle it from having OI. You see I developed severe scoliosis from battle OI (Brittle bone disease) yes most people with OI battle scoliosis but it usually doesn’t get as advanced as mine has gotten, plus there are not many OI patients who have survived as long as I have. They usually pass away at very young ages, so there’s just not much information about people having OI and abdominal hypertension or abdominal compartment syndrome. Usually people that do develop abdominal hypertension from scoliosis are people that battle other types of severe skeletal diseases such as osteoporosis or muscular dystrophy and many other diseases like this. These are the more common ones for causing stuff like abdominal hypertension or compartment syndrome.
But people who battle it from OI, especially the type of OI I battle is just extremely rare. So because of the fact that it is so rare for us “OI’ERS” as we call ourselves, they don’t know how severe it can get and they don’t know what high levels for someone like me would be. For example, when they do this pressure test they are looking for gas levels in your abdomen to be higher than 12, if you have a level of 12 to 15 I think than they consider that to be grade 1 if you have a level from 16 to 20 than they consider that to be grade 2 if you have a level of 21 to 25 than they consider that grade 3 and if you have a level of 25 they consider that grade 4 but if you go over that 25 mark or if you consistently stay at 25 even than that’s when your reaching compartment syndrome stage. My numbers were going from 16-18 there were a few times we got down to 13 so that’s why they are thinking I am battle grade 2 abdominal hypertension. But again they’re not sure if this number system that they use for the average person would be the same for me the number 16 for me might affect me more than the average person. For example a level 16 for me might feel like it was someone who had a level of 23. I hope you’re all understanding what I mean, I know it’s complicated 😂 but in a nutshell it means as long as none of my organs are being effected and as long as I’m not feeling any worse than we’re just going to keep watching it closely and that’s it. Like my surgeon keeps saying, my body is going to tell me what’s wrong a lot faster than a test will, so that’s what we’re going to do, we’re going to keep a close eye on my body and let it do the talking LOL 😂 I am going to try to live my life to the best of my ability and try to live it to the fullest and try not to dwell on how awful I feel and just keep marching on LOL. If you all could go watch my Vlog I give a much more in-depth look of my time at UH rainbows babies and children’s hospital and I share my entire experience with you all so go check that out and share this blog link with all your friends.
One last update before I end this blog. I suspect that my book should be releasing by October so I should have details on how you can get your preorders in very soon, but I will admit this is becoming very expensive, I just had to spend another few hundred dollars on editing the cover of my book and I know I’m still going to be asked to spend more on the actual making of the cover and on advertising for the book, so if any of you feel led to donate anything even if it’s just $5 I’d so appreciate that, but as always if you cannot than I totally understand. There are a few links below with donating options so just check those out and pick the one you’d like. As I just told you in the beginning of this blog my health has declined a lot over the past few months so I cannot do the things I used to do, like sell jewelry online, but I do still have some pieces left so if you want to buy something let me know. I just sadly can’t do lives like I used to because number one it’s just to much work for me physically and number two facebook is not making the selling process easy anymore so yeah I sadly can’t try to earn the money like I was doing, so if you can spare a $1 or $2 than please do by clicking any of the donation options below. Thank you so much for all your support all these years it means more to me than you will ever know. God bless and thanks for watching and reading lol
Hey all don’t forget about my Patreon Campaign. A Patreon Campaign is basically a partnership. There’s different dollar amounts you can commit to giving. There’s one as low as $5.00 and what I like about this program is, it is not just about giving, it’s about giving and receiving. To all those who commit to giving. There are different prizes/gifts you all get in return for giving. For example: Anyone who commits to donating $50 a Month. I will send you a THE-BOOK-OF-ROO magnet, a OI CAN DO ALL THINGS wristband and a THE-BOOK-OF-ROO Tote bag and maybe some jewelry or something. That’s just the $50 level reward but there’s some other great rewards on the site too plus anyone who joins no matter how much they commit to giving. They will automatically be among the first to receive my book. So check it out. Patreon Page Click here
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I THINK THATS IT FOR TODAY. THANKS FOR READING AND SUPPORTING ME AND THE-BOOK-OF-ROO. GOD BLESS AND PLEASE REMEMBER KEEP SHINING FOR CHRIST. BECAUSE HE NOT ONLY LOVES YOU, BUT ADORES YOU. ALSO PLEASE REMEMBER IF YOU NEED PRAYER I AND THE-BOOK-OF-ROO READERS ARE HERE TO PRAY. JUST STOP BY OUR PRAYER PAGE AND POST YOUR PRAYER REQUEST AND I PROMISE WE WILL PRAY 😇 ALSO PLEASE REMEMBER AS I SAID EARLIER, RUNNING THIS WEBSITE AND WRITING/PUBLISHING A BOOK DOES ALL COST MONEY. SO IF YOUR FEELING LED PLEASE DONATE TO MY SITE. ITS VERY EASY TO DO. WE HAVE MANY OPTIONS NOW BUT THE EASIEST OPTION IS JUST TO CLICK THE “DONATE” BUTTON AND FILL OUT THE FORM. PLEASE KNOW I AM GRATEFUL FOR EACH AND EVERY DONATION THAT COMES IN NO MATTER IF ITS THROUGH THE PATREON PAGE, PO BOX OR PAYPAL. GOD BLESS, I LOVE YOU ALL AND MORE IMPORTANTLY JESUS LOVES YOU. KEEP ON SHINING FOR CHRIST ❤️
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