Posted tagged ‘Music’

LIFE UPDATE-MY NEW REALITY

April 4, 2023

Hebrews 4:16

LET US THAN APPROACH GOD’S THRONE OF GRACE WITH CONFIDENCE, SO THAT WE MAY RECEIVE MERCY AND FIND GRACE TO HELP US IN OUR TIME OF NEED.

Hi all. I know it has been a minute, but the good news is the reason why you hadn’t heard from me is because I was having a pretty decent few months and as you all know by now, when I’m doing good I just like to enjoy the moment and focus on life and things in the real world lol. It was so fun, I celebrated the holidays and I was pretty well than. Right before the holidays my aunt and uncle came in to town and a few of my cousins and we surprised both my aunt and uncle with a 70th bday party and than also included my sister and so we also celebrated her 40th bday, so it was one big shebang which was a lot of fun. Life was going good I finally found a editor for my book and so that was moving along amazingly well, and still is by the way, it is actually almost done. It will be printed very soon, im thinking mid august maybe. Like I said life was running smoothly until I woke up one day and my body was just like, vengeance is mine wahahaha 😂😂😂

I woke up one day and noticed my tummy felt very bloated but I ignored it because I figured oh it’s nothing I probably either need more miralax (laxative) or I’m close to getting my period. After a few days of taking the miralax though I still was not getting any relief, but I still hadn’t gotten my period so I figured ok it must be that. I continue to wait and still no period and so now we’re like almost 2 months with no period, which was sooo unlike me and now my stomach is getting harder and harder and more bloated and now is so distended that it looked like I was pregnant! But still I thought nothing of it because my family kept saying my stomach was just fat because I was eating more than I ever did, so at the time I said: ok I could see that yeah maybe that is all it is. Than Christmas Eve came and I started my period which I thought was a good thing, I said; oh it’s finally back on track so I will finally get some relief, the bloating/distention will go down and everything will be great!

Well unfortunately that did not happen lol, the swelling did not go down and now I was having some weird female things going on, and I won’t get to detailed about those symptoms just because I know some people are uncomfortable talking about female things, I’m sure there’s already some people getting squeamish just because I mentioned the word period lol, but anyways yeah I was having some female issues plus the distention was getting out of control and now I was also having stomach pains, rib pain, back pain and even chest pain, bad chest pain, I imagine that how I felt was very similar to how you feel during a heart attack, but I was very confused by that because I knew it couldn’t be a heart attack because I just went to the cardiologist days before this started and everything checked out fine, so at this point I decided to stop trying to be the doctor and stop trying to do a diagnosis on myself and just go to the real Dr and get checked out.

I go to my primary Dr he sees how distended I am and hears about my female issues so he says; ok maybe it’s time you saw a OBGYN, so I go to the OBGYN Dr and they take one look at me and are like ummm you’re so brittle we are scared to death to touch you, so they basically tell me wait it out and see if it resolves itself. Well of course it never resolved it self so I went back and both me and my primary Dr were like ok we have to push them not to be so scared of touching me, so my primary Dr talks them into at least doing a in office ultrasound, they did that and saw everything looked pretty decent so next step was they could put me on a low dose birth control and see if my issues get solved from doing that. Well the birth control got me so sick I thought I was dying lol, and yes it fixed my “female” issue but it didn’t fix it for long because of the fact that I couldn’t stay on it soo that whole dance was basically a waste of time lol.

During all that we also realized that even when the birth control had started to fix my female issues it still did not fix the discomfort in my belly nor did it fix the distention, so my belly was just getting bigger and bigger to the point I went back to my primary Dr and he said ok let’s do a ct scan and if that doesn’t show anything let’s call your surgeon and see what ideas he has because as my primary Dr always says; two heads are better than one lol

As I suspected the CT scan didn’t show a single thing so it was off to the surgeon we went, the surgeon took one look at me and says you have compartment syndrome, to hear more about the diagnosis and all the ugly details about what compartment syndrome is than watch the video 👇

If your at this part of the blog than that means you read and watched everything about what’s going on and you know by now the diagnosis isn’t the greatest, it’s been a long few weeks my friends. I need you all to please pray that the Lord gives me strength not only physically but mentally because this is a hard one, I’m so bloated and uncomfortable that I physically cannot even turn on my side because my stomach is so distended so please pray for strength and guidance not only for me and my family but also the Doctors, thanks in advance all.

I will say; through this process so far the one thing the Lord keeps putting on my heart is keep moving forward, don’t give up , just because a death sentence is spoken over your life does not mean you lay down and die, as long as you have air in your lungs and you’re able to breathe than that means you’re alive so just keep your focus on that, keep your focus on life, not the things that are going on in it, or even your “feelings”, just keep focusing on Life. For example I’m staying focused on my learning to cook and my book and my vlogging and the many things I desire to do. That is what the Lord keeps showing me, so I am going to cling to that and not dwell on “time” but instead stay focused on life.

I really just wanted to update you on my health and share everything I been going through in hopes that it encourages you to stay strong and keep moving forward. Don’t feel bad for me please, even if my time does come to an end sooner than later, which I’m not saying will, I am just saying even if it did, that’s ok because I have had an amazingly blessed life that I am so grateful for, so do not feel sorry for me and if you do want to help me, help me by helping yourself, if you are a workaholic, stop, if you’re to scared to travel/fly get over it and start traveling, if your kid asks you to take them out to a basketball game but yet you have to work, take off, the job will always be there but your kid might not so take them to that game. Now of course I am not saying to act stupid and put yourself in debt, do these things responsibly of course, everything in moderation my friends😁

I just want to say before I end this blog that this Sunday is Easter Sunday as I am sure you all know, so please remember what he did for you on that cross and how he rose again on that Sunday. We are all saved time and time again and it is all because of his sacrifice. THANK YOU JESUS FOR YOUR GRACE🙏

That’s it for today my friends, thanks for watching/reading and most importantly thanks for praying for me 🙏

Hey all don’t forget about my Patreon Campaign. A Patreon Campaign is basically a partnership. There’s different dollar amounts you can commit to giving. There’s one as low as $5.00 and what I like about this program is, it is not just about giving, it’s about giving and receiving. To all those who commit to giving. There are different prizes/gifts you all get in return for giving. For example: Anyone who commits to donating $50 a Month. I will send you a THE-BOOK-OF-ROO magnet, a OI CAN DO ALL THINGS wristband and I will give some Perfectly Posh Products. That’s just the $50 level reward but there’s some other great rewards on the site too plus anyone who joins no matter how much they commit to giving. They will automatically be among the first to receive my book. So check it out.  Patreon Page Click here

THE-BOOK-OF-ROO has options now! If you all are looking for a way to reach me on a more personal level, or maybe want to send a cash donation you can do that now. Please send any cards/Letters/Gifts to this PO Box. PO BOX: THE-BOOK-OF-ROO

4496 Mahoning Avenue #911 Youngstown, OH 44515

Please remember you can still also donate by clicking the donate button that is located at the bottom of this and all other articles located on THE-BOOK-OF-ROO.

I THINK THATS IT FOR TODAY. THANKS FOR READING AND SUPPORTING ME AND THE-BOOK-OF-ROO. GOD BLESS AND PLEASE REMEMBER KEEP SHINING FOR CHRIST. BECAUSE HE NOT ONLY LOVES YOU, BUT ADORES YOU. ALSO PLEASE REMEMBER IF YOU NEED PRAYER I AND THE-BOOK-OF-ROO READERS ARE HERE TO PRAY. JUST STOP BY OUR PRAYER PAGE AND POST YOUR PRAYER REQUEST AND I PROMISE WE WILL PRAY 😇 ALSO PLEASE REMEMBER AS I SAID EARLIER, RUNNING THIS WEBSITE AND WRITING/PUBLISHING A BOOK DOES ALL COST MONEY. SO IF YOUR FEELING LED PLEASE DONATE TO MY SITE. ITS VERY EASY TO DO. WE HAVE MANY OPTIONS NOW BUT THE EASIEST OPTION IS JUST TO CLICK THE “DONATE” BUTTON AND FILL OUT THE FORM. PLEASE KNOW I AM GRATEFUL FOR EACH AND EVERY DONATION THAT COMES IN NO MATTER IF ITS THROUGH THE PATREON PAGE, PO BOX OR PAYPAL. GOD BLESS, I LOVE YOU ALL AND MORE IMPORTANTLY JESUS LOVES YOU. KEEP ON SHINING FOR CHRIST ❤️

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I WAS RUSHED TO THE ER (EMERGENCY ROOM ANd SPENT CHRISTMAS IN THE NICU (ICU/INTENSIVE CARE UNIT)

January 4, 2022

PSALMS 91:14-16

“BECAUSE HE LOVES ME,” SAYS THE LORD, “I WILL RESCUE HIM; I WILL PROTECT HIM, FOR HE ACKNOWLEDGES MY NAME. HE WILL CALL ON ME, AND I WILL ANSWER HIM; I WILL BE WITH HIM IN TROUBLE, I WILL DELIVER HIM AND HONOR HIM.WITH LONG LIFE I WILL SATISFY HIM AND SHOW HIM MY SALVATION.”

Hi all it’s me, boy has it been a world wind of a Christmas. I was rushed to the ER at 3AM on Christmas Eve of what my parents assumed was a typical what we call “stomach attack” and they assumed I’d be at the ER a couple hours, we figured I was dehydrated and assumed once I got fluids I’d be fine to go home, well that was not the case at all. From the second I got sick I kept telling my parents something was wrong and something was different, I kept telling my mom I didn’t think this was my “usual,” but we stayed optimistic and hoped I was wrong, well sadly I was not wrong and from the second I arrived at the ER they took me back and started working on me and within hours they confirmed I was right! It was not my usual “attacks” and they immediately told us I had to be put in ICU. There was a few hours where it was touch and go and where once again we were not sure if I’d survive, but as you know my God is a GOD of grace, hope and love and also as you all know I’m a fighter! Watch the video above 👆to hear all the gory details of why I was in there exactly and what I experienced physically and mentally.I hope you all had a very blessed Christmas, I know for a lot of us, not just me, it was a very different Christmas this year but as I keep telling people, we are survivors and the important thing is we got through it, we got through the drama, the fear, the confusion, the uncertainty, and most importantly ache that most of us are feeling in one way or another from losing the ones we love. I hope you all had a good new years, let’s keep looking forward and fighting for our future.I pretty much said everything I had to say in the Vlog (video above), so enjoy all and I’ve again merry Christmas and happy New Years all.

P.S. one of the reasons I also started making these Vlogs of my hospital admissions is so that they are there for families to watch and learn from. I feel more of us with rare diseases like the one I battle is important to be more open about these types of things because there are so many unknowns with diseases like this and so maybe if we all started being more open with our struggles and our experiences, than maybe, just maybe it could help us understand this evil world called OI (Osteogénese Imperfecta/brittle bone disease) better, and maybe even help us in our battle to survive. Alright all now I’m officially done talking lol. God bless thanks for watching/reading, and please if you haven’t done so yet subscribe to my YouTube channel and share my videos. If you have any questions about my admission in the hospital than please ask and I will for sure answer any and all questions you may have 😁😘

Hey all don’t forget about my Patreon Campaign. A Patreon Campaign is basically a partnership. There’s different dollar amounts you can commit to giving. There’s one as low as $5.00 and what I like about this program is, it is not just about giving, it’s about giving and receiving. To all those who commit to giving. There are different prizes/gifts you all get in return for giving. For example: Anyone who commits to donating $50 a Month. I will send you a THE-BOOK-OF-ROO magnet, a OI CAN DO ALL THINGS wristband and I will give some Perfectly Posh Products. That’s just the $50 level reward but there’s some other great rewards on the site too plus anyone who joins no matter how much they commit to giving. They will automatically be among the first to receive my book. So check it out.  Patreon Page Click here

THE-BOOK-OF-ROO has options now! If you all are looking for a way to reach me on a more personal level, or maybe want to send a cash donation you can do that now. Please send any cards/Letters/Gifts to this PO Box. PO BOX: THE-BOOK-OF-ROO

4496 Mahoning Avenue #911 Youngstown, OH 44515

Please remember you can still also donate by clicking the donate button that is located at the bottom of this and all other articles located on THE-BOOK-OF-ROO.

I THINK THATS IT FOR TODAY. THANKS FOR READING AND SUPPORTING ME AND THE-BOOK-OF-ROO. GOD BLESS AND PLEASE REMEMBER KEEP SHINING FOR CHRIST. BECAUSE HE NOT ONLY LOVES YOU, BUT ADORES YOU. ALSO PLEASE REMEMBER IF YOU NEED PRAYER I AND THE-BOOK-OF-ROO READERS ARE HERE TO PRAY. JUST STOP BY OUR PRAYER PAGE AND POST YOUR PRAYER REQUEST AND I PROMISE WE WILL PRAY 😇 ALSO PLEASE REMEMBER AS I SAID EARLIER, RUNNING THIS WEBSITE AND WRITING/PUBLISHING A BOOK DOES ALL COST MONEY. SO IF YOUR FEELING LED PLEASE DONATE TO MY SITE. ITS VERY EASY TO DO. WE HAVE MANY OPTIONS NOW BUT THE EASIEST OPTION IS JUST TO CLICK THE “DONATE” BUTTON AND FILL OUT THE FORM. PLEASE KNOW I AM GRATEFUL FOR EACH AND EVERY DONATION THAT COMES IN NO MATTER IF ITS THROUGH THE PATREON PAGE, PO BOX OR PAYPAL. GOD BLESS, I LOVE YOU ALL AND MORE IMPORTANTLY JESUS LOVES YOU. KEEP ON SHINING FOR CHRIST ❤️

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